Spontaneous Subarachnoid Haemorrhage multicenter database from the Group for the Study of Vascular Pathology of the Spanish Society for Neurosurgery: Presentation, inclusion criteria and development of an internet-based registry. Lagares, A., de Toledo, P., Fernandez-Alen, J. A., Ibanez, J., Arikan, F., Sarabia, R., Ballenilla, F., Gabarros, A., Horcajadas, A., Rodriguez-Boto, G., de la Lama, A., Maillo, A., Delgado, P., Llacer, J. L., Dominguez, J., & Arrese, I. Neurocirugia, 19(5):405–415, October, 2008.
abstract   bibtex   
Introduction. Subarachnoid haemorrhage is one of the most severe neurosurgical diseases. Its study is crucial for improving the care of these patients in our environment. With this goal the Group for the Study of Neurovascular Pathology of the Spanish Society for Neurosurgery (SENEC) decided to create a multicenter registry for the stud), of this disease. Materials and methods. In this database we have prospectively included all cases with spontaneous subarachnoid haemorrhage admitted to the participant hospitals from November 2004 to November 2007. The fields to be included in the database were selected by consensus, including age, past medical history, clinical characteristics at admission, radiological characteristics including presence or absence of an aneurysm and its size and location, type and complications of the aneurysm treatment, outcome assessed by the Glasgow Outcome Scale (GOS) at discharge and six months after the bleeding as well as the angiographic result of the aneurysm treatment. All fields were collected by means of an electronic form posted in secure web page. Results. During the three years of study a total of 1149 patients have been included by 14 Hospitals. The time needed to fill in a patient in the registry is approximately 3.4 minutes. This series of patients with spontaneous SAH is similar to other non-selected in-hospital series of SAH. The mean age of the patients is 55 years and there is a 4:3 female to male ratio. In relation to the severity of the bleeding 32% of the patients were in poor clinical grade at admission (WFNS 4 or 5). 5%, of the patients died before angiography could be performed. An aneurysm was confirmed as the origin of the bleeding in 76% of the patients (aSAH), while in 19% of the patients no lesion was found in the angiographic studies and were thus classified as idiopathic subarachnoid hemorrhage (ISAH). Of those patients with aSAH, 47%, were treated endovascularly, 39% surgically, 3% received a combined treatment and 11% did not receive any treatment for their aneurysm because of early death. Regarding outcome, there is a 22% mortality in the series. Only 40% of the patients with aSAH reached a good outcome at discharge (GOS = 5). Conclusions. Spontaneous SAH continues to be a disease with high morbidity and mortality. This database can be an ideal instrument for improving the knowledge about this disease in our environment and to achieve better results. It would be desirable that this database could in the future be the origin of a national registry of spontaneous SAH.
@ARTICLE{deToledo-2008a,
  author = {Lagares, A. and de Toledo, P. and Fernandez-Alen, J. A. and Ibanez,
	J. and Arikan, F. and Sarabia, R. and Ballenilla, F. and Gabarros,
	A. and Horcajadas, A. and Rodriguez-Boto, G. and de la Lama, A. and
	Maillo, A. and Delgado, P. and Llacer, J. L. and Dominguez, J. and
	Arrese, I.},
  title = {Spontaneous Subarachnoid Haemorrhage multicenter database from the
	Group for the Study of Vascular Pathology of the Spanish Society
	for Neurosurgery: Presentation, inclusion criteria and development
	of an internet-based registry},
  journal = {Neurocirugia},
  year = {2008},
  volume = {19},
  pages = {405--415},
  number = {5},
  month = oct,
  SN = {1130-1473},
  TC = {3},
  UT = {WOS:000260549500001},
  Z9 = {3},
  abstract = {Introduction. Subarachnoid haemorrhage is one of the most severe neurosurgical
	diseases. Its study is crucial for improving the care of these patients
	in our environment. With this goal the Group for the Study of Neurovascular
	Pathology of the Spanish Society for Neurosurgery (SENEC) decided
	to create a multicenter registry for the stud), of this disease.
	Materials and methods. In this database we have prospectively included
	all cases with spontaneous subarachnoid haemorrhage admitted to the
	participant hospitals from November 2004 to November 2007. The fields
	to be included in the database were selected by consensus, including
	age, past medical history, clinical characteristics at admission,
	radiological characteristics including presence or absence of an
	aneurysm and its size and location, type and complications of the
	aneurysm treatment, outcome assessed by the Glasgow Outcome Scale
	(GOS) at discharge and six months after the bleeding as well as the
	angiographic result of the aneurysm treatment. All fields were collected
	by means of an electronic form posted in secure web page. Results.
	During the three years of study a total of 1149 patients have been
	included by 14 Hospitals. The time needed to fill in a patient in
	the registry is approximately 3.4 minutes. This series of patients
	with spontaneous SAH is similar to other non-selected in-hospital
	series of SAH. The mean age of the patients is 55 years and there
	is a 4:3 female to male ratio. In relation to the severity of the
	bleeding 32% of the patients were in poor clinical grade at admission
	(WFNS 4 or 5). 5%, of the patients died before angiography could
	be performed. An aneurysm was confirmed as the origin of the bleeding
	in 76% of the patients (aSAH), while in 19% of the patients no lesion
	was found in the angiographic studies and were thus classified as
	idiopathic subarachnoid hemorrhage (ISAH). Of those patients with
	aSAH, 47%, were treated endovascularly, 39% surgically, 3% received
	a combined treatment and 11% did not receive any treatment for their
	aneurysm because of early death. Regarding outcome, there is a 22%
	mortality in the series. Only 40% of the patients with aSAH reached
	a good outcome at discharge (GOS = 5). Conclusions. Spontaneous SAH
	continues to be a disease with high morbidity and mortality. This
	database can be an ideal instrument for improving the knowledge about
	this disease in our environment and to achieve better results. It
	would be desirable that this database could in the future be the
	origin of a national registry of spontaneous SAH.}
}
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