Oral health education for systemic sclerosis patients: A booklet report. Almeida, T., Ferreira, A., da Silva, F., Chaves, C., Assunção, B., Martins, P., das Dores, A., de Moura, R., Andrade, J., Santos, F., Ferreira, G., & Calderaro, D. PEC Innovation, 2023.
Oral health education for systemic sclerosis patients: A booklet report [link]Paper  doi  abstract   bibtex   
Purpose/objectives: Systemic sclerosis (SSc) is a rare chronic autoimmune disease characterized by vascular abnormalities and connective tissue disorders. In 2021, the multidisciplinary team of the university hospital recognized a demand for oral health information among SSc patients. This study aims to describe the development of an SSc oral health booklet and its validation by people with SSc. Methods: For the development of the booklet, the project creators employed the action research methodology involving ten stages. SSc patients evaluated the material by filling out a digital form. Results: One hundred and thirty-one people with SSc evaluated the booklet. It received an average score of 9.73 (SD: 0.80) in relevance, 9.82 (SD: 0.47) in explicitness, and 9.49 (SD: 0.93) in aesthetics. The final version was emailed to the participants and posted on social media. Innovation: This is the first booklet that deeply addresses these issues in Portuguese and constitutes a soft technology to instruct and assist patients with SSc. Conclusion: The production of high-quality educational materials on oral health for patients with SSc is necessary. The online distribution increased its reach and had great importance in the context of the COVID-19 pandemic.
@article{almeida_oral_2023,
	title = {Oral health education for systemic sclerosis patients: {A} booklet report},
	volume = {2},
	issn = {2772-6282},
	url = {https://www.embase.com/search/results?subaction=viewrecord&id=L2023997243&from=export},
	doi = {10.1016/j.pecinn.2023.100154},
	abstract = {Purpose/objectives: Systemic sclerosis (SSc) is a rare chronic autoimmune disease characterized by vascular abnormalities and connective tissue disorders. In 2021, the multidisciplinary team of the university hospital recognized a demand for oral health information among SSc patients. This study aims to describe the development of an SSc oral health booklet and its validation by people with SSc. Methods: For the development of the booklet, the project creators employed the action research methodology involving ten stages. SSc patients evaluated the material by filling out a digital form. Results: One hundred and thirty-one people with SSc evaluated the booklet. It received an average score of 9.73 (SD: 0.80) in relevance, 9.82 (SD: 0.47) in explicitness, and 9.49 (SD: 0.93) in aesthetics. The final version was emailed to the participants and posted on social media. Innovation: This is the first booklet that deeply addresses these issues in Portuguese and constitutes a soft technology to instruct and assist patients with SSc. Conclusion: The production of high-quality educational materials on oral health for patients with SSc is necessary. The online distribution increased its reach and had great importance in the context of the COVID-19 pandemic.},
	language = {English},
	number = {(Almeida T.G.; Ferreira A.R.H.; da Silva F.S.; Chaves C.C., caiocarvalhaischaves@gmail.com; Ferreira G.A.; Calderaro D.C., dccalderaro@gmail.com) Universidade Federal de Minas Gerais, Medical School. Av. Prof. Alfredo Balena, 190 - Santa Efigênia, Belo Horizonte, MG, Brazil},
	journal = {PEC Innovation},
	author = {Almeida, T.G. and Ferreira, A.R.H. and da Silva, F.S. and Chaves, C.C. and Assunção, B.N. and Martins, P.S. and das Dores, A.S. and de Moura, R.M.F. and Andrade, J.A. and Santos, F.P.S.T. and Ferreira, G.A. and Calderaro, D.C.},
	year = {2023},
	keywords = {action research, article, connective tissue, coronavirus disease 2019, daily life activity, dental caries, dental health, dentist, denture brush, descriptive research, edentulism, education program, employment status, esophageal dysmotility, exercise, health education, human, intestinal dysmotility, mandibular bone resorption, medical student, microstomia, mouth hygiene, occupational therapist, occupational therapy, osteolysis, pandemic, patient assessment, patient education booklet, patient satisfaction, periodontal disease, physical activity, physiotherapist, problem solving, questionnaire, range of motion, response bias, rheumatologist, salivary gland, self care, social media, speech language pathologist, stretching exercise, systemic sclerosis, therapeutic misconception, tooth brushing, xerostomia},
}

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