Unintended ignorance: The narrative of 'the missing patient voice'. Asplin, B. R. Ephemera: theory & politics in organization, 2023.
abstract   bibtex   
This paper brings attention to the production of unintended ignorance in the context of patient involvement in the re-design of healthcare services. Ignorance is usually treated as the result of human and intentional inattention. Recent calls stress that more empirical studies are needed that go beyond understanding ignorance as performed by individuals to explore ignorance as a sociomaterial practice, including all its heterogeneous elements. Actor-network-theory (ANT) assumes that power does not relate primarily to human intention, but instead to the capability of actors, human and non-human, to cause relational effect. Through the lens of ANT and translation, this ethnographic study illustrates how ignorance is produced throughout a service design process in Norwegian health care seeking to involve patients and include the patient voice. It finds that ignorance is produced as patient-centred policy translates into a label — ‘the missing patient voice’ — enrolling actors and contributing to unintentionally ignoring the real patient voices. This article brings empirical insight into ignorance as practice by giving voice to the non-human actors involved in such efforts, bringing conceptual attention to the material dimension of ignorance. Furthermore, this study affords nuance in understanding practices of patient-centred care by offering a critical perspective on how well-intended efforts of locating and including the patient voice in healthcare services can become symbolic and instead bring passive, token patients (with no voices) into being.
@article{asplin2023,
	title = {Unintended ignorance: {The} narrative of 'the missing patient voice'.},
	abstract = {This paper brings attention to the production of unintended ignorance in the
context of patient involvement in the re-design of healthcare services. Ignorance is
usually treated as the result of human and intentional inattention. Recent calls
stress that more empirical studies are needed that go beyond understanding
ignorance as performed by individuals to explore ignorance as a sociomaterial
practice, including all its heterogeneous elements. Actor-network-theory (ANT)
assumes that power does not relate primarily to human intention, but instead to the
capability of actors, human and non-human, to cause relational effect. Through the
lens of ANT and translation, this ethnographic study illustrates how ignorance is
produced throughout a service design process in Norwegian health care seeking to
involve patients and include the patient voice. It finds that ignorance is produced as
patient-centred policy translates into a label — ‘the missing patient voice’ —
enrolling actors and contributing to unintentionally ignoring the real patient voices.
This article brings empirical insight into ignorance as practice by giving voice to the
non-human actors involved in such efforts, bringing conceptual attention to the
material dimension of ignorance. Furthermore, this study affords nuance in
understanding practices of patient-centred care by offering a critical perspective on
how well-intended efforts of locating and including the patient voice in healthcare
services can become symbolic and instead bring passive, token patients (with no
voices) into being.},
	journal = {Ephemera: theory \& politics in organization},
	author = {Asplin, Betina Riis},
	year = {2023},
}

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