Global Globin Network Consensus Paper: Classification and Stratified Roadmaps for Improved Thalassaemia Care and Prevention in 32 Countries. Bin Hashim Halim-Fikri, Lederer, C. W., Atif Amin Baig, Atif Amin Baig, Siti Nor Assyuhada Mat-Ghani, Siti Nor Assyuhada Mat-Ghani, Sharifah-Nany Rahayu-Karmilla Syed-Hassan, Sharifah-Nany Rahayu-Karmilla Syed-Hassan, Yusof, W., Diana Abdul Rashid, Diana Abdul Rashid, Nurul Fatihah Azman, Nurul Fatihah Azman, Suthat Fucharoen, Suthat Fucharoen, Ramdan Panigoro, Ramdan Panigoro, Catherine Lynn T. Silao, Catherine Lynn T. Silao, Vip Viprakasit, Vip Viprakasit, Norunaluwar Jalil, Norunaluwar Jalil, Norafiza Mohd Yasin, Norafiza Mohd Yasin, Rosnah Bahar, Rosnah Bahar, Veena Selvaratnam, Veena Selvaratnam, Norsarwany Mohamad, Norsarwany Mohamad, Nik Norliza Nik Hassan, Ezalia Esa, Ezalia Esa, Krause, A., Robinson, H. M., Julia Hasler, Julia Hasler, Stephanou, C., Raja-Zahratul-Azma Raja-Sabudin, Raja-Zahratul-Azma Raja-Sabudin, Elion, J., Ghada El-Kamah, Ghada El-Kamah, Coviello, D., Narazah Yusoff, Narazah Yusoff, Zarina Abdul Latiff, Zarina Abdul Latiff, Chris Arnold, Chris Arnold, John Burn, John Burn, Kountouris, P., Marina Kleanthous, Marina Kleanthous, Raj Ramesar, Raj Ramesar, Bin Alwi Zilfalil, & Bin Alwi Zilfalil Journal of Personalized Medicine, 12(4):552–552, March, 2022. doi abstract bibtex The Global Globin Network (GGN) is a project-wide initiative of the Human Variome/Global Variome Project (HVP) focusing on haemoglobinopathies to build the capacity for genomic diagnosis, clinical services, and research in low- and middle-income countries. At present, there is no framework to evaluate the improvement of care, treatment, and prevention of thalassaemia and other haemoglobinopathies globally, despite thalassaemia being one of the most common monogenic diseases worldwide. Here, we propose a universally applicable system for evaluating and grouping countries based on qualitative indicators according to the quality of care, treatment, and prevention of haemoglobinopathies. We also apply this system to GGN countries as proof of principle. To this end, qualitative indicators were extracted from the IthaMaps database of the ITHANET portal, which allowed four groups of countries (A, B, C, and D) to be defined based on major qualitative indicators, supported by minor qualitative indicators for countries with limited resource settings and by the overall haemoglobinopathy carrier frequency for the target countries of immigration. The proposed rubrics and accumulative scores will help analyse the performance and improvement of care, treatment, and prevention of haemoglobinopathies in the GGN and beyond. Our proposed criteria complement future data collection from GGN countries to help monitor the quality of services for haemoglobinopathies, provide ongoing estimates for services and epidemiology in GGN countries, and note the contribution of the GGN to a local and global reduction of disease burden.
@article{bin_hashim_halim-fikri_global_2022,
title = {Global {Globin} {Network} {Consensus} {Paper}: {Classification} and {Stratified} {Roadmaps} for {Improved} {Thalassaemia} {Care} and {Prevention} in 32 {Countries}},
volume = {12},
copyright = {All rights reserved},
doi = {10.3390/jpm12040552},
abstract = {The Global Globin Network (GGN) is a project-wide initiative of the Human Variome/Global Variome Project (HVP) focusing on haemoglobinopathies to build the capacity for genomic diagnosis, clinical services, and research in low- and middle-income countries. At present, there is no framework to evaluate the improvement of care, treatment, and prevention of thalassaemia and other haemoglobinopathies globally, despite thalassaemia being one of the most common monogenic diseases worldwide. Here, we propose a universally applicable system for evaluating and grouping countries based on qualitative indicators according to the quality of care, treatment, and prevention of haemoglobinopathies. We also apply this system to GGN countries as proof of principle. To this end, qualitative indicators were extracted from the IthaMaps database of the ITHANET portal, which allowed four groups of countries (A, B, C, and D) to be defined based on major qualitative indicators, supported by minor qualitative indicators for countries with limited resource settings and by the overall haemoglobinopathy carrier frequency for the target countries of immigration. The proposed rubrics and accumulative scores will help analyse the performance and improvement of care, treatment, and prevention of haemoglobinopathies in the GGN and beyond. Our proposed criteria complement future data collection from GGN countries to help monitor the quality of services for haemoglobinopathies, provide ongoing estimates for services and epidemiology in GGN countries, and note the contribution of the GGN to a local and global reduction of disease burden.},
number = {4},
journal = {Journal of Personalized Medicine},
author = {{Bin Hashim Halim-Fikri} and Lederer, Carsten W. and {Atif Amin Baig} and {Atif Amin Baig} and {Siti Nor Assyuhada Mat-Ghani} and {Siti Nor Assyuhada Mat-Ghani} and {Sharifah-Nany Rahayu-Karmilla Syed-Hassan} and {Sharifah-Nany Rahayu-Karmilla Syed-Hassan} and Yusof, Wardah and {Diana Abdul Rashid} and {Diana Abdul Rashid} and {Nurul Fatihah Azman} and {Nurul Fatihah Azman} and {Suthat Fucharoen} and {Suthat Fucharoen} and {Ramdan Panigoro} and {Ramdan Panigoro} and {Catherine Lynn T. Silao} and {Catherine Lynn T. Silao} and {Vip Viprakasit} and {Vip Viprakasit} and {Norunaluwar Jalil} and {Norunaluwar Jalil} and {Norafiza Mohd Yasin} and {Norafiza Mohd Yasin} and {Rosnah Bahar} and {Rosnah Bahar} and {Veena Selvaratnam} and {Veena Selvaratnam} and {Norsarwany Mohamad} and {Norsarwany Mohamad} and {Nik Norliza Nik Hassan} and {Ezalia Esa} and {Ezalia Esa} and Krause, Amanda and Robinson, Helen M. and {Julia Hasler} and {Julia Hasler} and Stephanou, Coralea and {Raja-Zahratul-Azma Raja-Sabudin} and {Raja-Zahratul-Azma Raja-Sabudin} and Elion, Jacques and {Ghada El-Kamah} and {Ghada El-Kamah} and Coviello, Domenico and {Narazah Yusoff} and {Narazah Yusoff} and {Zarina Abdul Latiff} and {Zarina Abdul Latiff} and {Chris Arnold} and {Chris Arnold} and {John Burn} and {John Burn} and Kountouris, Petros and {Marina Kleanthous} and {Marina Kleanthous} and {Raj Ramesar} and {Raj Ramesar} and {Bin Alwi Zilfalil} and {Bin Alwi Zilfalil}},
month = mar,
year = {2022},
doi = {10.3390/jpm12040552},
keywords = {Global Globin Network, Hemoglobinopathy VCEP, Human Variome Project, disease burden, epidemiology, haemoglobinopathy, low- and middle-income countries, prevention program, thalassaemia},
pages = {552--552},
}
Downloads: 0
{"_id":"Af2PjZXrdedL9nFSE","bibbaseid":"binhashimhalimfikri-lederer-atifaminbaig-atifaminbaig-sitinorassyuhadamatghani-sitinorassyuhadamatghani-sharifahnanyrahayukarmillasyedhassan-sharifahnanyrahayukarmillasyedhassan-etal-globalglobinnetworkconsensuspaperclassificationandstratifiedroadmapsforimprovedthalassaemiacareandpreventionin32countries-2022","author_short":["Bin Hashim Halim-Fikri","Lederer, C. W.","Atif Amin Baig","Atif Amin Baig","Siti Nor Assyuhada Mat-Ghani","Siti Nor Assyuhada Mat-Ghani","Sharifah-Nany Rahayu-Karmilla Syed-Hassan","Sharifah-Nany Rahayu-Karmilla Syed-Hassan","Yusof, W.","Diana Abdul Rashid","Diana Abdul Rashid","Nurul Fatihah Azman","Nurul Fatihah Azman","Suthat Fucharoen","Suthat Fucharoen","Ramdan Panigoro","Ramdan Panigoro","Catherine Lynn T. Silao","Catherine Lynn T. Silao","Vip Viprakasit","Vip Viprakasit","Norunaluwar Jalil","Norunaluwar Jalil","Norafiza Mohd Yasin","Norafiza Mohd Yasin","Rosnah Bahar","Rosnah Bahar","Veena Selvaratnam","Veena Selvaratnam","Norsarwany Mohamad","Norsarwany Mohamad","Nik Norliza Nik Hassan","Ezalia Esa","Ezalia Esa","Krause, A.","Robinson, H. M.","Julia Hasler","Julia Hasler","Stephanou, C.","Raja-Zahratul-Azma Raja-Sabudin","Raja-Zahratul-Azma Raja-Sabudin","Elion, J.","Ghada El-Kamah","Ghada El-Kamah","Coviello, D.","Narazah Yusoff","Narazah Yusoff","Zarina Abdul Latiff","Zarina Abdul Latiff","Chris Arnold","Chris Arnold","John Burn","John Burn","Kountouris, P.","Marina Kleanthous","Marina Kleanthous","Raj Ramesar","Raj Ramesar","Bin Alwi Zilfalil","Bin Alwi Zilfalil"],"bibdata":{"bibtype":"article","type":"article","title":"Global Globin Network Consensus Paper: Classification and Stratified Roadmaps for Improved Thalassaemia Care and Prevention in 32 Countries","volume":"12","copyright":"All rights reserved","doi":"10.3390/jpm12040552","abstract":"The Global Globin Network (GGN) is a project-wide initiative of the Human Variome/Global Variome Project (HVP) focusing on haemoglobinopathies to build the capacity for genomic diagnosis, clinical services, and research in low- and middle-income countries. At present, there is no framework to evaluate the improvement of care, treatment, and prevention of thalassaemia and other haemoglobinopathies globally, despite thalassaemia being one of the most common monogenic diseases worldwide. Here, we propose a universally applicable system for evaluating and grouping countries based on qualitative indicators according to the quality of care, treatment, and prevention of haemoglobinopathies. We also apply this system to GGN countries as proof of principle. To this end, qualitative indicators were extracted from the IthaMaps database of the ITHANET portal, which allowed four groups of countries (A, B, C, and D) to be defined based on major qualitative indicators, supported by minor qualitative indicators for countries with limited resource settings and by the overall haemoglobinopathy carrier frequency for the target countries of immigration. The proposed rubrics and accumulative scores will help analyse the performance and improvement of care, treatment, and prevention of haemoglobinopathies in the GGN and beyond. Our proposed criteria complement future data collection from GGN countries to help monitor the quality of services for haemoglobinopathies, provide ongoing estimates for services and epidemiology in GGN countries, and note the contribution of the GGN to a local and global reduction of disease burden.","number":"4","journal":"Journal of Personalized Medicine","author":[{"firstnames":[],"propositions":[],"lastnames":["Bin Hashim Halim-Fikri"],"suffixes":[]},{"propositions":[],"lastnames":["Lederer"],"firstnames":["Carsten","W."],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Atif Amin Baig"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Atif Amin Baig"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Siti Nor Assyuhada Mat-Ghani"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Siti Nor Assyuhada Mat-Ghani"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Sharifah-Nany Rahayu-Karmilla Syed-Hassan"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Sharifah-Nany Rahayu-Karmilla Syed-Hassan"],"suffixes":[]},{"propositions":[],"lastnames":["Yusof"],"firstnames":["Wardah"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Diana Abdul Rashid"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Diana Abdul Rashid"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Nurul Fatihah Azman"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Nurul Fatihah Azman"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Suthat Fucharoen"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Suthat Fucharoen"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Ramdan Panigoro"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Ramdan Panigoro"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Catherine Lynn T. Silao"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Catherine Lynn T. Silao"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Vip Viprakasit"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Vip Viprakasit"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Norunaluwar Jalil"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Norunaluwar Jalil"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Norafiza Mohd Yasin"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Norafiza Mohd Yasin"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Rosnah Bahar"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Rosnah Bahar"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Veena Selvaratnam"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Veena Selvaratnam"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Norsarwany Mohamad"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Norsarwany Mohamad"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Nik Norliza Nik Hassan"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Ezalia Esa"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Ezalia Esa"],"suffixes":[]},{"propositions":[],"lastnames":["Krause"],"firstnames":["Amanda"],"suffixes":[]},{"propositions":[],"lastnames":["Robinson"],"firstnames":["Helen","M."],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Julia Hasler"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Julia Hasler"],"suffixes":[]},{"propositions":[],"lastnames":["Stephanou"],"firstnames":["Coralea"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Raja-Zahratul-Azma Raja-Sabudin"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Raja-Zahratul-Azma Raja-Sabudin"],"suffixes":[]},{"propositions":[],"lastnames":["Elion"],"firstnames":["Jacques"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Ghada El-Kamah"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Ghada El-Kamah"],"suffixes":[]},{"propositions":[],"lastnames":["Coviello"],"firstnames":["Domenico"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Narazah Yusoff"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Narazah Yusoff"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Zarina Abdul Latiff"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Zarina Abdul Latiff"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Chris Arnold"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Chris Arnold"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["John Burn"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["John Burn"],"suffixes":[]},{"propositions":[],"lastnames":["Kountouris"],"firstnames":["Petros"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Marina Kleanthous"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Marina Kleanthous"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Raj Ramesar"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Raj Ramesar"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Bin Alwi Zilfalil"],"suffixes":[]},{"firstnames":[],"propositions":[],"lastnames":["Bin Alwi Zilfalil"],"suffixes":[]}],"month":"March","year":"2022","keywords":"Global Globin Network, Hemoglobinopathy VCEP, Human Variome Project, disease burden, epidemiology, haemoglobinopathy, low- and middle-income countries, prevention program, thalassaemia","pages":"552–552","bibtex":"@article{bin_hashim_halim-fikri_global_2022,\n\ttitle = {Global {Globin} {Network} {Consensus} {Paper}: {Classification} and {Stratified} {Roadmaps} for {Improved} {Thalassaemia} {Care} and {Prevention} in 32 {Countries}},\n\tvolume = {12},\n\tcopyright = {All rights reserved},\n\tdoi = {10.3390/jpm12040552},\n\tabstract = {The Global Globin Network (GGN) is a project-wide initiative of the Human Variome/Global Variome Project (HVP) focusing on haemoglobinopathies to build the capacity for genomic diagnosis, clinical services, and research in low- and middle-income countries. At present, there is no framework to evaluate the improvement of care, treatment, and prevention of thalassaemia and other haemoglobinopathies globally, despite thalassaemia being one of the most common monogenic diseases worldwide. Here, we propose a universally applicable system for evaluating and grouping countries based on qualitative indicators according to the quality of care, treatment, and prevention of haemoglobinopathies. We also apply this system to GGN countries as proof of principle. To this end, qualitative indicators were extracted from the IthaMaps database of the ITHANET portal, which allowed four groups of countries (A, B, C, and D) to be defined based on major qualitative indicators, supported by minor qualitative indicators for countries with limited resource settings and by the overall haemoglobinopathy carrier frequency for the target countries of immigration. The proposed rubrics and accumulative scores will help analyse the performance and improvement of care, treatment, and prevention of haemoglobinopathies in the GGN and beyond. Our proposed criteria complement future data collection from GGN countries to help monitor the quality of services for haemoglobinopathies, provide ongoing estimates for services and epidemiology in GGN countries, and note the contribution of the GGN to a local and global reduction of disease burden.},\n\tnumber = {4},\n\tjournal = {Journal of Personalized Medicine},\n\tauthor = {{Bin Hashim Halim-Fikri} and Lederer, Carsten W. and {Atif Amin Baig} and {Atif Amin Baig} and {Siti Nor Assyuhada Mat-Ghani} and {Siti Nor Assyuhada Mat-Ghani} and {Sharifah-Nany Rahayu-Karmilla Syed-Hassan} and {Sharifah-Nany Rahayu-Karmilla Syed-Hassan} and Yusof, Wardah and {Diana Abdul Rashid} and {Diana Abdul Rashid} and {Nurul Fatihah Azman} and {Nurul Fatihah Azman} and {Suthat Fucharoen} and {Suthat Fucharoen} and {Ramdan Panigoro} and {Ramdan Panigoro} and {Catherine Lynn T. Silao} and {Catherine Lynn T. Silao} and {Vip Viprakasit} and {Vip Viprakasit} and {Norunaluwar Jalil} and {Norunaluwar Jalil} and {Norafiza Mohd Yasin} and {Norafiza Mohd Yasin} and {Rosnah Bahar} and {Rosnah Bahar} and {Veena Selvaratnam} and {Veena Selvaratnam} and {Norsarwany Mohamad} and {Norsarwany Mohamad} and {Nik Norliza Nik Hassan} and {Ezalia Esa} and {Ezalia Esa} and Krause, Amanda and Robinson, Helen M. and {Julia Hasler} and {Julia Hasler} and Stephanou, Coralea and {Raja-Zahratul-Azma Raja-Sabudin} and {Raja-Zahratul-Azma Raja-Sabudin} and Elion, Jacques and {Ghada El-Kamah} and {Ghada El-Kamah} and Coviello, Domenico and {Narazah Yusoff} and {Narazah Yusoff} and {Zarina Abdul Latiff} and {Zarina Abdul Latiff} and {Chris Arnold} and {Chris Arnold} and {John Burn} and {John Burn} and Kountouris, Petros and {Marina Kleanthous} and {Marina Kleanthous} and {Raj Ramesar} and {Raj Ramesar} and {Bin Alwi Zilfalil} and {Bin Alwi Zilfalil}},\n\tmonth = mar,\n\tyear = {2022},\n\tdoi = {10.3390/jpm12040552},\n\tkeywords = {Global Globin Network, Hemoglobinopathy VCEP, Human Variome Project, disease burden, epidemiology, haemoglobinopathy, low- and middle-income countries, prevention program, thalassaemia},\n\tpages = {552--552},\n}\n\n","author_short":["Bin Hashim Halim-Fikri","Lederer, C. W.","Atif Amin Baig","Atif Amin Baig","Siti Nor Assyuhada Mat-Ghani","Siti Nor Assyuhada Mat-Ghani","Sharifah-Nany Rahayu-Karmilla Syed-Hassan","Sharifah-Nany Rahayu-Karmilla Syed-Hassan","Yusof, W.","Diana Abdul Rashid","Diana Abdul Rashid","Nurul Fatihah Azman","Nurul Fatihah Azman","Suthat Fucharoen","Suthat Fucharoen","Ramdan Panigoro","Ramdan Panigoro","Catherine Lynn T. Silao","Catherine Lynn T. Silao","Vip Viprakasit","Vip Viprakasit","Norunaluwar Jalil","Norunaluwar Jalil","Norafiza Mohd Yasin","Norafiza Mohd Yasin","Rosnah Bahar","Rosnah Bahar","Veena Selvaratnam","Veena Selvaratnam","Norsarwany Mohamad","Norsarwany Mohamad","Nik Norliza Nik Hassan","Ezalia Esa","Ezalia Esa","Krause, A.","Robinson, H. M.","Julia Hasler","Julia Hasler","Stephanou, C.","Raja-Zahratul-Azma Raja-Sabudin","Raja-Zahratul-Azma Raja-Sabudin","Elion, J.","Ghada El-Kamah","Ghada El-Kamah","Coviello, D.","Narazah Yusoff","Narazah Yusoff","Zarina Abdul Latiff","Zarina Abdul Latiff","Chris Arnold","Chris Arnold","John Burn","John Burn","Kountouris, P.","Marina Kleanthous","Marina Kleanthous","Raj Ramesar","Raj Ramesar","Bin Alwi Zilfalil","Bin Alwi Zilfalil"],"key":"bin_hashim_halim-fikri_global_2022","id":"bin_hashim_halim-fikri_global_2022","bibbaseid":"binhashimhalimfikri-lederer-atifaminbaig-atifaminbaig-sitinorassyuhadamatghani-sitinorassyuhadamatghani-sharifahnanyrahayukarmillasyedhassan-sharifahnanyrahayukarmillasyedhassan-etal-globalglobinnetworkconsensuspaperclassificationandstratifiedroadmapsforimprovedthalassaemiacareandpreventionin32countries-2022","role":"author","urls":{},"keyword":["Global Globin Network","Hemoglobinopathy VCEP","Human Variome Project","disease burden","epidemiology","haemoglobinopathy","low- and middle-income countries","prevention program","thalassaemia"],"metadata":{"authorlinks":{}}},"bibtype":"article","biburl":"https://api.zotero.org/users/4516419/collections/XQQRG67P/items?key=iUGtZ5FwZ23zKgsOTKK1Vgda&format=bibtex&limit=100","dataSources":["MnayAXw3qciX87bz7","6iCaXTjNkdcqEW6gd"],"keywords":["global globin network","hemoglobinopathy vcep","human variome project","disease burden","epidemiology","haemoglobinopathy","low- and middle-income countries","prevention program","thalassaemia"],"search_terms":["global","globin","network","consensus","paper","classification","stratified","roadmaps","improved","thalassaemia","care","prevention","countries","bin hashim halim-fikri","lederer","atif amin baig","atif amin baig","siti nor assyuhada mat-ghani","siti nor assyuhada mat-ghani","sharifah-nany rahayu-karmilla syed-hassan","sharifah-nany rahayu-karmilla syed-hassan","yusof","diana abdul rashid","diana abdul rashid","nurul fatihah azman","nurul fatihah azman","suthat fucharoen","suthat fucharoen","ramdan panigoro","ramdan panigoro","catherine lynn t. silao","catherine lynn t. silao","vip viprakasit","vip viprakasit","norunaluwar jalil","norunaluwar jalil","norafiza mohd yasin","norafiza mohd yasin","rosnah bahar","rosnah bahar","veena selvaratnam","veena selvaratnam","norsarwany mohamad","norsarwany mohamad","nik norliza nik hassan","ezalia esa","ezalia esa","krause","robinson","julia hasler","julia hasler","stephanou","raja-zahratul-azma raja-sabudin","raja-zahratul-azma raja-sabudin","elion","ghada el-kamah","ghada el-kamah","coviello","narazah yusoff","narazah yusoff","zarina abdul latiff","zarina abdul latiff","chris arnold","chris arnold","john burn","john burn","kountouris","marina kleanthous","marina kleanthous","raj ramesar","raj ramesar","bin alwi zilfalil","bin alwi zilfalil"],"title":"Global Globin Network Consensus Paper: Classification and Stratified Roadmaps for Improved Thalassaemia Care and Prevention in 32 Countries","year":2022}