Communicating prognosis with parents of critically ill infants: direct observation of clinician behaviors. Boss, R. D., Lemmon, M. E., Arnold, R. M., & Donohue, P. K. Journal of Perinatology, 37:1224–1227, July, 2017.
Communicating prognosis with parents of critically ill infants: direct observation of clinician behaviors [link]Paper  doi  abstract   bibtex   
Objective: Delivering prognostic information to families requires clinicians to forecast an infant’s illness course and future. We lack robust empirical data about how prognosis is shared and how that affects clinician–family concordance regarding infant outcomes. Study Design: Prospective audiorecording of neonatal intensive care unit family conferences, immediately followed by parent/clinician surveys. Existing qualitative analysis frameworks were applied. Results: We analyzed 19 conferences. Most prognostic discussion targeted predicted infant functional needs, for example, medications or feeding. There was little discussion of how infant prognosis would affect infant/family quality of life. Prognostic framing was typically optimistic. Most parents left the conference believing their infant’s prognosis to be more optimistic than did clinicians. Conclusions: Clinician approach to prognostic disclosure in these audiotaped family conferences tended to be broad and optimistic, without detail regarding implications of infant health for infant/family quality of life. Families and clinicians left these conversations with little consensus about infant prognosis.
@article{boss_communicating_2017,
	title = {Communicating prognosis with parents of critically ill infants: direct observation of clinician behaviors},
	volume = {37},
	copyright = {© 2017 Nature Publishing Group},
	issn = {0743-8346},
	shorttitle = {Communicating prognosis with parents of critically ill infants},
	url = {http://www.nature.com/jp/journal/vaop/ncurrent/full/jp2017118a.html?foxtrotcallback=true},
	doi = {10.1038/jp.2017.118},
	abstract = {Objective: Delivering prognostic information to families requires clinicians to forecast an infant’s illness course and future. We lack robust empirical data about how prognosis is shared and how that affects clinician–family concordance regarding infant outcomes.
Study Design: Prospective audiorecording of neonatal intensive care unit family conferences, immediately followed by parent/clinician surveys. Existing qualitative analysis frameworks were applied.
Results: We analyzed 19 conferences. Most prognostic discussion targeted predicted infant functional needs, for example, medications or feeding. There was little discussion of how infant prognosis would affect infant/family quality of life. Prognostic framing was typically optimistic. Most parents left the conference believing their infant’s prognosis to be more optimistic than did clinicians.
Conclusions: Clinician approach to prognostic disclosure in these audiotaped family conferences tended to be broad and optimistic, without detail regarding implications of infant health for infant/family quality of life. Families and clinicians left these conversations with little consensus about infant prognosis.},
	language = {en},
	urldate = {2017-07-31},
	journal = {Journal of Perinatology},
	author = {Boss, R. D. and Lemmon, M. E. and Arnold, R. M. and Donohue, P. K.},
	month = jul,
	year = {2017},
	keywords = {Berman},
	pages = {1224--1227}
}

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