Data Centre Profile: The Provincial Health Data Centre of the Western Cape Province, South Africa. Boulle, A., Heekes, A., Tiffin, N., Smith, M., Mutemaringa, T., Zinyakatira, N., Phelanyane, F., Pienaar, C., Buddiga, K., Coetzee, E., Van Rooyen, R., Dyers, R., Fredericks, N., Loff, A., Shand, L., Moodley, M., De Vega, I., & Vallabhjee, K. International Journal of Population Data Science, nov, 2019. ![Data Centre Profile: The Provincial Health Data Centre of the Western Cape Province, South Africa [link]](https://bibbase.org/img/filetypes/link.svg "link")
Paper doi abstract bibtex Introduction The Western Cape Provincial Health Data Centre (PHDC) consolidates person-level clinical data across government services, leveraging sustained investments in patient registration systems, a unique identifier, and maturation of administrative and clinical digital health systems. Objectives The PHDC supports clinical care directly through tools for clinicians which integrate patient data or identify patients in need of interventions, and indirectly through supporting operational and epidemiological analyses. Methods The PHDC is housed entirely within government. Data are processed from a range of source systems, usually daily, through distinct harmonisation and curation, beneficiation, and reporting processes. Linkage is predominantly through the unique identifier which doubles as a pervasive folder number, augmented by other identifiers. Further data processing includes triangulation of multiple data sources for enumerating health conditions, with assignment of certainty levels for each enumeration. Outputs include patient-specific email alerts, a web-based consolidated patient clinical viewing platform, filterable line-listings of patients with specific conditions and associated characteristics and outcomes, management reports and dashboards, and data releases in response to operational and research data requests. Strict architectural, administrative and governance processes ensure privacy-protection. Results In the past decade 8 million unique people are recorded as having sought healthcare in the provincial public sector health services, with current utilisation at 15 million attendances or admissions a year. Cross-sectional enumeration of health conditions includes over 430 000 people with HIV, 500 000 with hypertension, 235 000 with diabetes. 110 000 pregnancies and 54 000 patients with tuberculosis are enumerated annually. Each year over 50 data requests are processed for internal and external requesters in accordance with data request and release governance processes. Conclusions The single consolidated environment for person-level health data in the Western Cape has created new opportunities for supporting patient care, while improving the governance around access to and release of sensitive patient data.
@article{Boulle2019,
abstract = {Introduction The Western Cape Provincial Health Data Centre (PHDC) consolidates person-level clinical data across government services, leveraging sustained investments in patient registration systems, a unique identifier, and maturation of administrative and clinical digital health systems. Objectives The PHDC supports clinical care directly through tools for clinicians which integrate patient data or identify patients in need of interventions, and indirectly through supporting operational and epidemiological analyses. Methods The PHDC is housed entirely within government. Data are processed from a range of source systems, usually daily, through distinct harmonisation and curation, beneficiation, and reporting processes. Linkage is predominantly through the unique identifier which doubles as a pervasive folder number, augmented by other identifiers. Further data processing includes triangulation of multiple data sources for enumerating health conditions, with assignment of certainty levels for each enumeration. Outputs include patient-specific email alerts, a web-based consolidated patient clinical viewing platform, filterable line-listings of patients with specific conditions and associated characteristics and outcomes, management reports and dashboards, and data releases in response to operational and research data requests. Strict architectural, administrative and governance processes ensure privacy-protection. Results In the past decade 8 million unique people are recorded as having sought healthcare in the provincial public sector health services, with current utilisation at 15 million attendances or admissions a year. Cross-sectional enumeration of health conditions includes over 430 000 people with HIV, 500 000 with hypertension, 235 000 with diabetes. 110 000 pregnancies and 54 000 patients with tuberculosis are enumerated annually. Each year over 50 data requests are processed for internal and external requesters in accordance with data request and release governance processes. Conclusions The single consolidated environment for person-level health data in the Western Cape has created new opportunities for supporting patient care, while improving the governance around access to and release of sensitive patient data.},
author = {Boulle, Andrew and Heekes, Alexa and Tiffin, Nicki and Smith, Mariette and Mutemaringa, Themba and Zinyakatira, Nesbert and Phelanyane, Florence and Pienaar, Cara and Buddiga, Kasturi and Coetzee, Eduan and {Van Rooyen}, Renier and Dyers, Robin and Fredericks, Naadir and Loff, Adam and Shand, Lesley and Moodley, Melvin and {De Vega}, Ian and Vallabhjee, Krish},
doi = {10.23889/ijpds.v4i2.1143},
file = {:C$\backslash$:/Users/01462563/AppData/Local/Mendeley Ltd./Mendeley Desktop/Downloaded/Boulle et al. - 2019 - Data Centre Profile The Provincial Health Data Centre of the Western Cape Province, South Africa.pdf:pdf},
issn = {2399-4908},
journal = {International Journal of Population Data Science},
keywords = {Data Centre,HIV information systems,Health Information Exchange,Health data centre,OA,Patient privacy,South Africa,Southern Africa,Western Cape,fund{\_}ack,original},
mendeley-tags = {OA,fund{\_}ack,original},
month = {nov},
number = {2},
pmid = {32935043},
title = {{Data Centre Profile: The Provincial Health Data Centre of the Western Cape Province, South Africa}},
url = {https://ijpds.org/article/view/1143},
volume = {4},
year = {2019}
}
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Objectives The PHDC supports clinical care directly through tools for clinicians which integrate patient data or identify patients in need of interventions, and indirectly through supporting operational and epidemiological analyses. Methods The PHDC is housed entirely within government. Data are processed from a range of source systems, usually daily, through distinct harmonisation and curation, beneficiation, and reporting processes. Linkage is predominantly through the unique identifier which doubles as a pervasive folder number, augmented by other identifiers. Further data processing includes triangulation of multiple data sources for enumerating health conditions, with assignment of certainty levels for each enumeration. Outputs include patient-specific email alerts, a web-based consolidated patient clinical viewing platform, filterable line-listings of patients with specific conditions and associated characteristics and outcomes, management reports and dashboards, and data releases in response to operational and research data requests. Strict architectural, administrative and governance processes ensure privacy-protection. Results In the past decade 8 million unique people are recorded as having sought healthcare in the provincial public sector health services, with current utilisation at 15 million attendances or admissions a year. Cross-sectional enumeration of health conditions includes over 430 000 people with HIV, 500 000 with hypertension, 235 000 with diabetes. 110 000 pregnancies and 54 000 patients with tuberculosis are enumerated annually. Each year over 50 data requests are processed for internal and external requesters in accordance with data request and release governance processes. Conclusions The single consolidated environment for person-level health data in the Western Cape has created new opportunities for supporting patient care, while improving the governance around access to and release of sensitive patient data.","author":[{"propositions":[],"lastnames":["Boulle"],"firstnames":["Andrew"],"suffixes":[]},{"propositions":[],"lastnames":["Heekes"],"firstnames":["Alexa"],"suffixes":[]},{"propositions":[],"lastnames":["Tiffin"],"firstnames":["Nicki"],"suffixes":[]},{"propositions":[],"lastnames":["Smith"],"firstnames":["Mariette"],"suffixes":[]},{"propositions":[],"lastnames":["Mutemaringa"],"firstnames":["Themba"],"suffixes":[]},{"propositions":[],"lastnames":["Zinyakatira"],"firstnames":["Nesbert"],"suffixes":[]},{"propositions":[],"lastnames":["Phelanyane"],"firstnames":["Florence"],"suffixes":[]},{"propositions":[],"lastnames":["Pienaar"],"firstnames":["Cara"],"suffixes":[]},{"propositions":[],"lastnames":["Buddiga"],"firstnames":["Kasturi"],"suffixes":[]},{"propositions":[],"lastnames":["Coetzee"],"firstnames":["Eduan"],"suffixes":[]},{"propositions":[],"lastnames":["Van Rooyen"],"firstnames":["Renier"],"suffixes":[]},{"propositions":[],"lastnames":["Dyers"],"firstnames":["Robin"],"suffixes":[]},{"propositions":[],"lastnames":["Fredericks"],"firstnames":["Naadir"],"suffixes":[]},{"propositions":[],"lastnames":["Loff"],"firstnames":["Adam"],"suffixes":[]},{"propositions":[],"lastnames":["Shand"],"firstnames":["Lesley"],"suffixes":[]},{"propositions":[],"lastnames":["Moodley"],"firstnames":["Melvin"],"suffixes":[]},{"propositions":[],"lastnames":["De Vega"],"firstnames":["Ian"],"suffixes":[]},{"propositions":[],"lastnames":["Vallabhjee"],"firstnames":["Krish"],"suffixes":[]}],"doi":"10.23889/ijpds.v4i2.1143","file":":C$\\$:/Users/01462563/AppData/Local/Mendeley Ltd./Mendeley Desktop/Downloaded/Boulle et al. - 2019 - Data Centre Profile The Provincial Health Data Centre of the Western Cape Province, South Africa.pdf:pdf","issn":"2399-4908","journal":"International Journal of Population Data Science","keywords":"Data Centre,HIV information systems,Health Information Exchange,Health data centre,OA,Patient privacy,South Africa,Southern Africa,Western Cape,fund_ack,original","mendeley-tags":"OA,fund_ack,original","month":"nov","number":"2","pmid":"32935043","title":"Data Centre Profile: The Provincial Health Data Centre of the Western Cape Province, South Africa","url":"https://ijpds.org/article/view/1143","volume":"4","year":"2019","bibtex":"@article{Boulle2019,\r\nabstract = {Introduction The Western Cape Provincial Health Data Centre (PHDC) consolidates person-level clinical data across government services, leveraging sustained investments in patient registration systems, a unique identifier, and maturation of administrative and clinical digital health systems. Objectives The PHDC supports clinical care directly through tools for clinicians which integrate patient data or identify patients in need of interventions, and indirectly through supporting operational and epidemiological analyses. Methods The PHDC is housed entirely within government. Data are processed from a range of source systems, usually daily, through distinct harmonisation and curation, beneficiation, and reporting processes. Linkage is predominantly through the unique identifier which doubles as a pervasive folder number, augmented by other identifiers. Further data processing includes triangulation of multiple data sources for enumerating health conditions, with assignment of certainty levels for each enumeration. Outputs include patient-specific email alerts, a web-based consolidated patient clinical viewing platform, filterable line-listings of patients with specific conditions and associated characteristics and outcomes, management reports and dashboards, and data releases in response to operational and research data requests. Strict architectural, administrative and governance processes ensure privacy-protection. Results In the past decade 8 million unique people are recorded as having sought healthcare in the provincial public sector health services, with current utilisation at 15 million attendances or admissions a year. Cross-sectional enumeration of health conditions includes over 430 000 people with HIV, 500 000 with hypertension, 235 000 with diabetes. 110 000 pregnancies and 54 000 patients with tuberculosis are enumerated annually. Each year over 50 data requests are processed for internal and external requesters in accordance with data request and release governance processes. 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