Bring Your Own Data workshop is an excellent tool to promote the establishment of Findable, Accessible, Interoperable, and Reusable rare disease registries. Carta, C., Roos, M., Jansen, M., Wilkinson, M., D., Bonino da Silva Santos, L., van Enckevort, D., & Taruscio, D. In Procedigs of the European Human Genetics Conference 2017, 2017.
Bring Your Own Data workshop is an excellent tool to promote the establishment of Findable, Accessible, Interoperable, and Reusable rare disease registries [link]Website  bibtex   
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 title = {Bring Your Own Data workshop is an excellent tool to promote the establishment of Findable, Accessible, Interoperable, and Reusable rare disease registries},
 type = {inproceedings},
 year = {2017},
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 author = {Carta, Claudio and Roos, Marco and Jansen, Mascha and Wilkinson, Mark D and Bonino da Silva Santos, Luis and van Enckevort, David and Taruscio, Domenica},
 booktitle = {Procedigs of the European Human Genetics Conference 2017}
}

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