@article{decamp_engagement_2025,
	title = {Engagement {Methods} in {Brain} {Tumor} {Genomic} {Research}: {Multimethod} {Comparative} {Study}},
	volume = {17},
	copyright = {Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License},
	issn = {2152-7202},
	shorttitle = {Engagement {Methods} in {Brain} {Tumor} {Genomic} {Research}},
	url = {https://jopm.jmir.org/2025/1/e68852},
	doi = {10.2196/68852},
	abstract = {Background: Engaging patients, care partners, and others in research planning and conduct is increasingly valued. However, identifying the most effective ways to do so remains a challenge. Objective: This study aimed to evaluate participation and participant experience using 3 engagement methods with the Low-Grade Glioma (LGG) Registry’s Optimizing Engagement in Discovery of Molecular Evolution of Low-Grade Glioma (OPTIMUM) project, part of the National Cancer Institute’s Participant Engagement and Cancer Genome Sequencing Network.},
	language = {en},
	urldate = {2026-08-06},
	journal = {Journal of Participatory Medicine},
	author = {DeCamp, Matthew and Barnard, Juliana G and Ritger, Carly and Helmkamp, Laura J and Begum, Anowara and Garcia-Hernandez, Sandra and Fischmann, Rudy and Gay, Nestelynn and Gonzalez-Fisher, Ricardo and Johnson, Kevin C and Lennox, Lindsay A and Lipof, Guy R and Ostmeyer, Jasmyn and Perkins, Ifeoma and Pyle, Laura and Salmi, Liz and Thompson, Talia and Claus, Elizabeth B and Verhaak, Roel and Kwan, Bethany M},
	month = aug,
	year = {2025},
	pages = {e68852},
	url_paper={https://api.zotero.org/users/14490939/publications/items/WGR98EWL/file/view}
}

{"_id":"y7wiKRWNLQJNQyR9u","bibbaseid":"decamp-barnard-ritger-helmkamp-begum-garciahernandez-fischmann-gay-etal-engagementmethodsinbraintumorgenomicresearchmultimethodcomparativestudy-2025","author_short":["DeCamp, M.","Barnard, J. G","Ritger, C.","Helmkamp, L. J","Begum, A.","Garcia-Hernandez, S.","Fischmann, R.","Gay, N.","Gonzalez-Fisher, R.","Johnson, K. C","Lennox, L. A","Lipof, G. R","Ostmeyer, J.","Perkins, I.","Pyle, L.","Salmi, L.","Thompson, T.","Claus, E. B","Verhaak, R.","Kwan, B. M"],"bibdata":{"bibtype":"article","type":"article","title":"Engagement Methods in Brain Tumor Genomic Research: Multimethod Comparative Study","volume":"17","copyright":"Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License","issn":"2152-7202","shorttitle":"Engagement Methods in Brain Tumor Genomic Research","url":"https://jopm.jmir.org/2025/1/e68852","doi":"10.2196/68852","abstract":"Background: Engaging patients, care partners, and others in research planning and conduct is increasingly valued. However, identifying the most effective ways to do so remains a challenge. Objective: This study aimed to evaluate participation and participant experience using 3 engagement methods with the Low-Grade Glioma (LGG) Registry’s Optimizing Engagement in Discovery of Molecular Evolution of Low-Grade Glioma (OPTIMUM) project, part of the National Cancer Institute’s Participant Engagement and Cancer Genome Sequencing Network.","language":"en","urldate":"2026-08-06","journal":"Journal of Participatory Medicine","author":[{"propositions":[],"lastnames":["DeCamp"],"firstnames":["Matthew"],"suffixes":[]},{"propositions":[],"lastnames":["Barnard"],"firstnames":["Juliana","G"],"suffixes":[]},{"propositions":[],"lastnames":["Ritger"],"firstnames":["Carly"],"suffixes":[]},{"propositions":[],"lastnames":["Helmkamp"],"firstnames":["Laura","J"],"suffixes":[]},{"propositions":[],"lastnames":["Begum"],"firstnames":["Anowara"],"suffixes":[]},{"propositions":[],"lastnames":["Garcia-Hernandez"],"firstnames":["Sandra"],"suffixes":[]},{"propositions":[],"lastnames":["Fischmann"],"firstnames":["Rudy"],"suffixes":[]},{"propositions":[],"lastnames":["Gay"],"firstnames":["Nestelynn"],"suffixes":[]},{"propositions":[],"lastnames":["Gonzalez-Fisher"],"firstnames":["Ricardo"],"suffixes":[]},{"propositions":[],"lastnames":["Johnson"],"firstnames":["Kevin","C"],"suffixes":[]},{"propositions":[],"lastnames":["Lennox"],"firstnames":["Lindsay","A"],"suffixes":[]},{"propositions":[],"lastnames":["Lipof"],"firstnames":["Guy","R"],"suffixes":[]},{"propositions":[],"lastnames":["Ostmeyer"],"firstnames":["Jasmyn"],"suffixes":[]},{"propositions":[],"lastnames":["Perkins"],"firstnames":["Ifeoma"],"suffixes":[]},{"propositions":[],"lastnames":["Pyle"],"firstnames":["Laura"],"suffixes":[]},{"propositions":[],"lastnames":["Salmi"],"firstnames":["Liz"],"suffixes":[]},{"propositions":[],"lastnames":["Thompson"],"firstnames":["Talia"],"suffixes":[]},{"propositions":[],"lastnames":["Claus"],"firstnames":["Elizabeth","B"],"suffixes":[]},{"propositions":[],"lastnames":["Verhaak"],"firstnames":["Roel"],"suffixes":[]},{"propositions":[],"lastnames":["Kwan"],"firstnames":["Bethany","M"],"suffixes":[]}],"month":"August","year":"2025","pages":"e68852","url_paper":"https://api.zotero.org/users/14490939/publications/items/WGR98EWL/file/view","bibtex":"@article{decamp_engagement_2025,\n\ttitle = {Engagement {Methods} in {Brain} {Tumor} {Genomic} {Research}: {Multimethod} {Comparative} {Study}},\n\tvolume = {17},\n\tcopyright = {Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License},\n\tissn = {2152-7202},\n\tshorttitle = {Engagement {Methods} in {Brain} {Tumor} {Genomic} {Research}},\n\turl = {https://jopm.jmir.org/2025/1/e68852},\n\tdoi = {10.2196/68852},\n\tabstract = {Background: Engaging patients, care partners, and others in research planning and conduct is increasingly valued. However, identifying the most effective ways to do so remains a challenge. Objective: This study aimed to evaluate participation and participant experience using 3 engagement methods with the Low-Grade Glioma (LGG) Registry’s Optimizing Engagement in Discovery of Molecular Evolution of Low-Grade Glioma (OPTIMUM) project, part of the National Cancer Institute’s Participant Engagement and Cancer Genome Sequencing Network.},\n\tlanguage = {en},\n\turldate = {2026-08-06},\n\tjournal = {Journal of Participatory Medicine},\n\tauthor = {DeCamp, Matthew and Barnard, Juliana G and Ritger, Carly and Helmkamp, Laura J and Begum, Anowara and Garcia-Hernandez, Sandra and Fischmann, Rudy and Gay, Nestelynn and Gonzalez-Fisher, Ricardo and Johnson, Kevin C and Lennox, Lindsay A and Lipof, Guy R and Ostmeyer, Jasmyn and Perkins, Ifeoma and Pyle, Laura and Salmi, Liz and Thompson, Talia and Claus, Elizabeth B and Verhaak, Roel and Kwan, Bethany M},\n\tmonth = aug,\n\tyear = {2025},\n\tpages = {e68852},\n\turl_paper={https://api.zotero.org/users/14490939/publications/items/WGR98EWL/file/view}\n}\n\n\n\n\n\n\n\n","author_short":["DeCamp, M.","Barnard, J. G","Ritger, C.","Helmkamp, L. J","Begum, A.","Garcia-Hernandez, S.","Fischmann, R.","Gay, N.","Gonzalez-Fisher, R.","Johnson, K. C","Lennox, L. A","Lipof, G. R","Ostmeyer, J.","Perkins, I.","Pyle, L.","Salmi, L.","Thompson, T.","Claus, E. B","Verhaak, R.","Kwan, B. M"],"key":"decamp_engagement_2025","id":"decamp_engagement_2025","bibbaseid":"decamp-barnard-ritger-helmkamp-begum-garciahernandez-fischmann-gay-etal-engagementmethodsinbraintumorgenomicresearchmultimethodcomparativestudy-2025","role":"author","urls":{"Paper":"https://jopm.jmir.org/2025/1/e68852"," paper":"https://api.zotero.org/users/14490939/publications/items/WGR98EWL/file/view"},"metadata":{"authorlinks":{}}},"bibtype":"article","biburl":"https://bibbase.org/zotero-mypublications/lizsalmi","dataSources":["tXdjan2EsRaZnLHkJ","omejyQz8YqXE4qK37"],"keywords":[],"search_terms":["engagement","methods","brain","tumor","genomic","research","multimethod","comparative","study","decamp","barnard","ritger","helmkamp","begum","garcia-hernandez","fischmann","gay","gonzalez-fisher","johnson","lennox","lipof","ostmeyer","perkins","pyle","salmi","thompson","claus","verhaak","kwan"],"title":"Engagement Methods in Brain Tumor Genomic Research: Multimethod Comparative Study","year":2025}