Big Data and Ethics Review for Health Systems Research in LMICs: Understanding Risk, Uncertainty and Ignorance-And Catching the Black Swans?. Dereli, T., Coşkun, Y., Kolker, E., Güner, Ö., Aǧirbaşli, M., & Özdemir, V. American Journal of Bioethics, 14(2):48-50, 2, 2014. Website abstract bibtex The authors reflects on the ethics review needed for the big data health systems research (HSR), explaining that a proper review needs to separate among the concepts of risk, uncertainty, ignorance and black swan events. Topics include the manner of addressing low- and middle-income countries' (LMICs) HSR and the likelihood of big data governance missing an opportunity for ethics capacity building in LMICs.
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abstract = {The authors reflects on the ethics review needed for the big data health systems research (HSR), explaining that a proper review needs to separate among the concepts of risk, uncertainty, ignorance and black swan events. Topics include the manner of addressing low- and middle-income countries' (LMICs) HSR and the likelihood of big data governance missing an opportunity for ethics capacity building in LMICs.},
bibtype = {article},
author = {Dereli, Türkay and Coşkun, Yavuz and Kolker, Eugene and Güner, Öner and Aǧirbaşli, Mehmet and Özdemir, Vural},
journal = {American Journal of Bioethics},
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