Big Data and Ethics Review for Health Systems Research in LMICs: Understanding Risk, Uncertainty and Ignorance-And Catching the Black Swans?. Dereli, T.; Coşkun, Y.; Kolker, E.; Güner, Ö.; Aǧirbaşli, M.; and Özdemir, V. American Journal of Bioethics, 14(2):48-50, 2, 2014.
Big Data and Ethics Review for Health Systems Research in LMICs: Understanding Risk, Uncertainty and Ignorance-And Catching the Black Swans? [link]Website  abstract   bibtex   
The authors reflects on the ethics review needed for the big data health systems research (HSR), explaining that a proper review needs to separate among the concepts of risk, uncertainty, ignorance and black swan events. Topics include the manner of addressing low- and middle-income countries' (LMICs) HSR and the likelihood of big data governance missing an opportunity for ethics capacity building in LMICs.
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 title = {Big Data and Ethics Review for Health Systems Research in LMICs: Understanding Risk, Uncertainty and Ignorance-And Catching the Black Swans?},
 type = {article},
 year = {2014},
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 pages = {48-50},
 volume = {14},
 websites = {http://www.tandfonline.com/doi/abs/10.1080/15265161.2013.868955},
 month = {2},
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 abstract = {The authors reflects on the ethics review needed for the big data health systems research (HSR), explaining that a proper review needs to separate among the concepts of risk, uncertainty, ignorance and black swan events. Topics include the manner of addressing low- and middle-income countries' (LMICs) HSR and the likelihood of big data governance missing an opportunity for ethics capacity building in LMICs.},
 bibtype = {article},
 author = {Dereli, Türkay and Coşkun, Yavuz and Kolker, Eugene and Güner, Öner and Aǧirbaşli, Mehmet and Özdemir, Vural},
 journal = {American Journal of Bioethics},
 number = {2}
}
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