@article{
 title = {Towards FAIRification of sensitive and fragmented rare disease patient data: challenges and solutions in European reference network registries},
 type = {article},
 year = {2022},
 pages = {436},
 volume = {17},
 websites = {https://ojrd.biomedcentral.com/articles/10.1186/s13023-022-02558-5},
 month = {12},
 day = {14},
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 created = {2023-01-30T12:21:40.056Z},
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 profile_id = {17c87d5d-2470-32d7-b273-0734a1d9195f},
 last_modified = {2023-04-18T10:52:45.332Z},
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 authored = {true},
 confirmed = {true},
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 folder_uuids = {ec2ec352-fa41-43db-919d-f96649955c40},
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 bibtype = {article},
 author = {dos Santos Vieira, Bruna and Bernabé, César H. and Zhang, Shuxin and Abaza, Haitham and Benis, Nirupama and Cámara, Alberto and Cornet, Ronald and Le Cornec, Clémence M. A. and ’t Hoen, Peter A. C. and Schaefer, Franz and van der Velde, K. Joeri and Swertz, Morris A. and Wilkinson, Mark D. and Jacobsen, Annika and Roos, Marco},
 doi = {10.1186/s13023-022-02558-5},
 journal = {Orphanet Journal of Rare Diseases},
 number = {1}
}

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