@article{giannuzzi_ethical_2017,
	title = {The ethical framework for performing research with rare inherited neurometabolic disease patients},
	volume = {176},
	url = {https://link.springer.com/article/10.1007/s00431-017-2852-9},
	doi = {10.1007/s00431-017-2852-9},
	abstract = {The need for performing clinical trials to develop well-studied and appropriate medicines for inherited neurometabolic disease patients faces ethical concerns mainly raising from four aspects: the dis},
	language = {English},
	number = {3},
	journal = {European Journal of Pediatrics},
	author = {Giannuzzi, Viviana and Devlieger, Hugo and Margari, Lucia and Odlind, Viveca Lena and Ragab, Lamis and Bellettato, Cinzia Maria and D’Avanzo, Francesca and Lampe, Christina and Cassis, Linda and Cortès-Saladelafont, Elisenda and Cazorla, Ángels Garcia and Barić, Ivo and Cvitanović-Šojat, Ljerka and Fumić, Ksenija and Dali, Christine I and Bartoloni, Franco and Bonifazi, Fedele and Scarpa, Maurizio and Ceci, Adriana},
	month = jan,
	year = {2017},
	pages = {395--405},
}

{"_id":"5mmEHL36peJmswAxH","bibbaseid":"giannuzzi-devlieger-margari-odlind-ragab-bellettato-davanzo-lampe-etal-theethicalframeworkforperformingresearchwithrareinheritedneurometabolicdiseasepatients-2017","author_short":["Giannuzzi, V.","Devlieger, H.","Margari, L.","Odlind, V. L.","Ragab, L.","Bellettato, C. M.","D’Avanzo, F.","Lampe, C.","Cassis, L.","Cortès-Saladelafont, E.","Cazorla, Á. G.","Barić, I.","Cvitanović-Šojat, L.","Fumić, K.","Dali, C. I","Bartoloni, F.","Bonifazi, F.","Scarpa, M.","Ceci, A."],"bibdata":{"bibtype":"article","type":"article","title":"The ethical framework for performing research with rare inherited neurometabolic disease patients","volume":"176","url":"https://link.springer.com/article/10.1007/s00431-017-2852-9","doi":"10.1007/s00431-017-2852-9","abstract":"The need for performing clinical trials to develop well-studied and appropriate medicines for inherited neurometabolic disease patients faces ethical concerns mainly raising from four aspects: the dis","language":"English","number":"3","journal":"European Journal of Pediatrics","author":[{"propositions":[],"lastnames":["Giannuzzi"],"firstnames":["Viviana"],"suffixes":[]},{"propositions":[],"lastnames":["Devlieger"],"firstnames":["Hugo"],"suffixes":[]},{"propositions":[],"lastnames":["Margari"],"firstnames":["Lucia"],"suffixes":[]},{"propositions":[],"lastnames":["Odlind"],"firstnames":["Viveca","Lena"],"suffixes":[]},{"propositions":[],"lastnames":["Ragab"],"firstnames":["Lamis"],"suffixes":[]},{"propositions":[],"lastnames":["Bellettato"],"firstnames":["Cinzia","Maria"],"suffixes":[]},{"propositions":[],"lastnames":["D’Avanzo"],"firstnames":["Francesca"],"suffixes":[]},{"propositions":[],"lastnames":["Lampe"],"firstnames":["Christina"],"suffixes":[]},{"propositions":[],"lastnames":["Cassis"],"firstnames":["Linda"],"suffixes":[]},{"propositions":[],"lastnames":["Cortès-Saladelafont"],"firstnames":["Elisenda"],"suffixes":[]},{"propositions":[],"lastnames":["Cazorla"],"firstnames":["Ángels","Garcia"],"suffixes":[]},{"propositions":[],"lastnames":["Barić"],"firstnames":["Ivo"],"suffixes":[]},{"propositions":[],"lastnames":["Cvitanović-Šojat"],"firstnames":["Ljerka"],"suffixes":[]},{"propositions":[],"lastnames":["Fumić"],"firstnames":["Ksenija"],"suffixes":[]},{"propositions":[],"lastnames":["Dali"],"firstnames":["Christine","I"],"suffixes":[]},{"propositions":[],"lastnames":["Bartoloni"],"firstnames":["Franco"],"suffixes":[]},{"propositions":[],"lastnames":["Bonifazi"],"firstnames":["Fedele"],"suffixes":[]},{"propositions":[],"lastnames":["Scarpa"],"firstnames":["Maurizio"],"suffixes":[]},{"propositions":[],"lastnames":["Ceci"],"firstnames":["Adriana"],"suffixes":[]}],"month":"January","year":"2017","pages":"395–405","bibtex":"@article{giannuzzi_ethical_2017,\n\ttitle = {The ethical framework for performing research with rare inherited neurometabolic disease patients},\n\tvolume = {176},\n\turl = {https://link.springer.com/article/10.1007/s00431-017-2852-9},\n\tdoi = {10.1007/s00431-017-2852-9},\n\tabstract = {The need for performing clinical trials to develop well-studied and appropriate medicines for inherited neurometabolic disease patients faces ethical concerns mainly raising from four aspects: the dis},\n\tlanguage = {English},\n\tnumber = {3},\n\tjournal = {European Journal of Pediatrics},\n\tauthor = {Giannuzzi, Viviana and Devlieger, Hugo and Margari, Lucia and Odlind, Viveca Lena and Ragab, Lamis and Bellettato, Cinzia Maria and D’Avanzo, Francesca and Lampe, Christina and Cassis, Linda and Cortès-Saladelafont, Elisenda and Cazorla, Ángels Garcia and Barić, Ivo and Cvitanović-Šojat, Ljerka and Fumić, Ksenija and Dali, Christine I and Bartoloni, Franco and Bonifazi, Fedele and Scarpa, Maurizio and Ceci, Adriana},\n\tmonth = jan,\n\tyear = {2017},\n\tpages = {395--405},\n}\n\n","author_short":["Giannuzzi, V.","Devlieger, H.","Margari, L.","Odlind, V. L.","Ragab, L.","Bellettato, C. M.","D’Avanzo, F.","Lampe, C.","Cassis, L.","Cortès-Saladelafont, E.","Cazorla, Á. G.","Barić, I.","Cvitanović-Šojat, L.","Fumić, K.","Dali, C. I","Bartoloni, F.","Bonifazi, F.","Scarpa, M.","Ceci, A."],"key":"giannuzzi_ethical_2017","id":"giannuzzi_ethical_2017","bibbaseid":"giannuzzi-devlieger-margari-odlind-ragab-bellettato-davanzo-lampe-etal-theethicalframeworkforperformingresearchwithrareinheritedneurometabolicdiseasepatients-2017","role":"author","urls":{"Paper":"https://link.springer.com/article/10.1007/s00431-017-2852-9"},"metadata":{"authorlinks":{}},"html":""},"bibtype":"article","biburl":"https://bibbase.org/zotero/kountour","dataSources":["MnayAXw3qciX87bz7"],"keywords":[],"search_terms":["ethical","framework","performing","research","rare","inherited","neurometabolic","disease","patients","giannuzzi","devlieger","margari","odlind","ragab","bellettato","d’avanzo","lampe","cassis","cortès-saladelafont","cazorla","barić","cvitanović-šojat","fumić","dali","bartoloni","bonifazi","scarpa","ceci"],"title":"The ethical framework for performing research with rare inherited neurometabolic disease patients","year":2017}