@article{
 title = {Reforming the HIPAA Privacy Rule: Safeguarding Privacy and Promoting Research},
 type = {article},
 year = {2009},
 identifiers = {[object Object]},
 keywords = {healthcare,healthcare-laws,privacy,summarized},
 pages = {1373-1375},
 volume = {301},
 websites = {http://dx.doi.org/10.1001/jama.2009.424},
 month = {4},
 id = {7997a0e5-1689-3cb6-bdcb-74b182530345},
 created = {2018-07-12T21:32:28.244Z},
 file_attached = {false},
 profile_id = {f954d000-ce94-3da6-bd26-b983145a920f},
 group_id = {b0b145a3-980e-3ad7-a16f-c93918c606ed},
 last_modified = {2018-07-12T21:32:28.244Z},
 read = {false},
 starred = {false},
 authored = {false},
 confirmed = {true},
 hidden = {false},
 citation_key = {gostin:hipaa},
 source_type = {article},
 notes = {A position paper arguing why the HIPAA privacy rule is inadequate and indeed gets in the way of conducting research: it does not cover all types of health data or all entities who handle health data; it is inconsistently applied and differs from the rules often used by IRBs; there is variation in the way the rules are applied. They feel that the focus on patient consent is misguided: "A new approach to the oversight of information-based research would emphasize data security, transparency, and accountability." They advocate for the DHHS to revise the privacy rules, "with expanded guidance including best practices for privacy protection in responsible research", and to better distinguish between research and practice.},
 private_publication = {false},
 abstract = {(none)},
 bibtype = {article},
 author = {Gostin, Lawrence O and Nass, Sharyl},
 journal = {Journal of the American Medical Association},
 number = {13}
}

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