Drug-resistant tuberculosis patient care journeys in South Africa: a pilot study using routine laboratory data. Hill, J, Dickson-Hall, L, Grant, A D, Grundy, C, Black, J, Kielmann, K, Mlisana, K, Mitrani, L, Loveday, M, Moshabela, M, Le Roux, S, Jassat, W, Nicol, M, & Cox, H. The International Journal of Tuberculosis and Lung Disease, 24(1):83–91, jan, 2020. Paper doi abstract bibtex SETTING: Thirteen districts in Eastern Cape (EC), KwaZulu-Natal (KZN) and Western Cape (WC) Provinces, South Africa. OBJECTIVE: To pilot a methodology for describing and visualising healthcare journeys among drug-resistant tuberculosis (DR-TB) patients using routine laboratory records. DESIGN: Laboratory records were obtained for 195 patients with laboratory-detected rifampicin-resistant TB (RR-TB) during July–September 2016. Health facility visits identified from these data were plotted to visualise patient healthcare journeys. Data were verified by facility visits. RESULTS: In the 9 months after the index RR-TB sample was collected, patients visited a mean of 2.3 health facilities (95% CI 2.1–2.6), with 9% visiting ≥4 facilities. The median distance travelled by patients from rural areas (116 km, interquartile range [IQR] 50–290) was greater than for urban patients (51 km, IQR 9–140). A median of 21% of patient's time was spent under the care of primary healthcare facilities: this was respectively 6%, 37% and 39% in KZN, EC and WC. Journey patterns were generally similar within districts. Some reflected a semi-centralised model of care where patients were referred to regional hospitals; other journeys showed greater involvement of primary care. CONCLUSION: Routine laboratory data can be used to explore DR-TB patient healthcare journeys and show how the use of healthcare services for DR-TB varies in different settings.
@article{Hill2020,
abstract = {SETTING: Thirteen districts in Eastern Cape (EC), KwaZulu-Natal (KZN) and Western Cape (WC) Provinces, South Africa. OBJECTIVE: To pilot a methodology for describing and visualising healthcare journeys among drug-resistant tuberculosis (DR-TB) patients using routine laboratory records. DESIGN: Laboratory records were obtained for 195 patients with laboratory-detected rifampicin-resistant TB (RR-TB) during July–September 2016. Health facility visits identified from these data were plotted to visualise patient healthcare journeys. Data were verified by facility visits. RESULTS: In the 9 months after the index RR-TB sample was collected, patients visited a mean of 2.3 health facilities (95{\%} CI 2.1–2.6), with 9{\%} visiting ≥4 facilities. The median distance travelled by patients from rural areas (116 km, interquartile range [IQR] 50–290) was greater than for urban patients (51 km, IQR 9–140). A median of 21{\%} of patient's time was spent under the care of primary healthcare facilities: this was respectively 6{\%}, 37{\%} and 39{\%} in KZN, EC and WC. Journey patterns were generally similar within districts. Some reflected a semi-centralised model of care where patients were referred to regional hospitals; other journeys showed greater involvement of primary care. CONCLUSION: Routine laboratory data can be used to explore DR-TB patient healthcare journeys and show how the use of healthcare services for DR-TB varies in different settings.},
author = {Hill, J and Dickson-Hall, L and Grant, A D and Grundy, C and Black, J and Kielmann, K and Mlisana, K and Mitrani, L and Loveday, M and Moshabela, M and {Le Roux}, S and Jassat, W and Nicol, M and Cox, Helen},
doi = {10.5588/ijtld.19.0100},
file = {:C$\backslash$:/Users/01462563/AppData/Local/Mendeley Ltd./Mendeley Desktop/Downloaded/Hill et al. - 2020 - Drug-resistant tuberculosis patient care journeys in South Africa a pilot study using routine laboratory data.pdf:pdf},
issn = {1027-3719},
journal = {The International Journal of Tuberculosis and Lung Disease},
keywords = {OA,fund{\_}not{\_}ack,original},
mendeley-tags = {OA,fund{\_}not{\_}ack,original},
month = {jan},
number = {1},
pages = {83--91},
title = {{Drug-resistant tuberculosis patient care journeys in South Africa: a pilot study using routine laboratory data}},
url = {https://www.ingentaconnect.com/content/10.5588/ijtld.19.0100},
volume = {24},
year = {2020}
}
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Health facility visits identified from these data were plotted to visualise patient healthcare journeys. Data were verified by facility visits. RESULTS: In the 9 months after the index RR-TB sample was collected, patients visited a mean of 2.3 health facilities (95% CI 2.1–2.6), with 9% visiting ≥4 facilities. The median distance travelled by patients from rural areas (116 km, interquartile range [IQR] 50–290) was greater than for urban patients (51 km, IQR 9–140). A median of 21% of patient's time was spent under the care of primary healthcare facilities: this was respectively 6%, 37% and 39% in KZN, EC and WC. Journey patterns were generally similar within districts. Some reflected a semi-centralised model of care where patients were referred to regional hospitals; other journeys showed greater involvement of primary care. 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