Content of advance care planning among Japanese elderly people living at home: A qualitative study. Hirakawa, Y., Chiang, C., Hilawe, E. H., & Aoyama, A. Archives of gerontology and geriatrics, 70:162–168, June, 2017. Place: Netherlands
doi  abstract   bibtex   
PURPOSE OF STUDY: Elderly peoples' values and preferences for end-of-life care have not yet known in details. The aim of the present study was to investigate the end-of-life wishes and decision making among Japanese elderly people who required home care services. The study was designed to qualitative research strategies, using face to face interview data recorded in nursing care records, with a focus on advance care planning. DESIGN AND METHODS: A total of 102 elderly people (47 males, 55 females) of 6 home care support offices in Hyogo prefecture participated. RESULTS AND IMPLICATIONS: We finally extracted the following 5 themes: anxiety about the future, abandonment of control, clinging to current daily life, precarious mutual support, delegating decision-making. While elderly people living at home generally feel anxious and fearful about the future, they seemed to try to avoid thinking too seriously about possible complications in their life. They also tend to leave end-of-life decision to someone else, and their decisions tend to change as they advance in age and as their condition deteriorates. Our findings suggest that medical professionals and care managers always support their patients' decisions, allowing for the views of the informal caregivers on whom elderly people rely for decision-making.
@article{hirakawa_content_2017,
	title = {Content of advance care planning among {Japanese} elderly people living at home: {A}  qualitative study.},
	volume = {70},
	copyright = {Copyright © 2017 Elsevier B.V. All rights reserved.},
	issn = {1872-6976 0167-4943},
	doi = {10.1016/j.archger.2017.01.007},
	abstract = {PURPOSE OF STUDY: Elderly peoples' values and preferences for end-of-life care have  not yet known in details. The aim of the present study was to investigate the  end-of-life wishes and decision making among Japanese elderly people who required  home care services. The study was designed to qualitative research strategies, using  face to face interview data recorded in nursing care records, with a focus on  advance care planning. DESIGN AND METHODS: A total of 102 elderly people (47 males,  55 females) of 6 home care support offices in Hyogo prefecture participated. RESULTS  AND IMPLICATIONS: We finally extracted the following 5 themes: anxiety about the  future, abandonment of control, clinging to current daily life, precarious mutual  support, delegating decision-making. While elderly people living at home generally  feel anxious and fearful about the future, they seemed to try to avoid thinking too  seriously about possible complications in their life. They also tend to leave  end-of-life decision to someone else, and their decisions tend to change as they  advance in age and as their condition deteriorates. Our findings suggest that  medical professionals and care managers always support their patients' decisions,  allowing for the views of the informal caregivers on whom elderly people rely for  decision-making.},
	language = {eng},
	journal = {Archives of gerontology and geriatrics},
	author = {Hirakawa, Yoshihisa and Chiang, Chifa and Hilawe, Esayas Haregot and Aoyama, Atsuko},
	month = jun,
	year = {2017},
	pmid = {28171836},
	note = {Place: Netherlands},
	keywords = {*Advance Care Planning, *Decision Making, Activities of Daily Living, Aged, Aged, 80 and over, Anxiety/psychology, Decision making, End-of-life care, Female, Humans, Japan, Living will, Male, Middle Aged, Personal Autonomy, Proxy, Qualitative study, Social Support},
	pages = {162--168},
}

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