@article{Hudson2020,
abstract = {Addressing Indigenous rights and interests in genetic resources has become increasingly challenging in an open science environment that promotes unrestricted access to genomic data. Although Indigenous experiences with genetic research have been shaped by a series of negative interactions, there is increasing recognition that equitable benefits can only be realized through greater participation of Indigenous communities. Issues of trust, accountability and equity underpin Indigenous critiques of genetic research and the sharing of genomic data. This Perspectives article highlights identified issues for Indigenous communities around the sharing of genomic data and suggests principles and actions that genomic researchers can adopt to recognize community rights and interests in data. In this Perspective article, the authors discuss how Indigenous Peoples' desires for greater involvement and oversight when participating in genomic research projects can be balanced against calls for unrestricted data access. They provide practical recommendations for the handling and sharing of Indigenous genomic data, with the aim of achieving mutual benefit for the research community and participating Indigenous communities.},
author = {Hudson, Maui and Garrison, Nanibaa' A. and Sterling, Rogena and Caron, Nadine R. and Fox, Keolu and Yracheta, Joseph and Anderson, Jane and Wilcox, Phil and Arbour, Laura and Brown, Alex and Taualii, Maile and Kukutai, Tahu and Haring, Rodney and {Te Aika}, Ben and Baynam, Gareth S. and Dearden, Peter K. and Chagn{\'{e}}, David and Malhi, Ripan S. and Garba, Ibrahim and Tiffin, Nicki and Bolnick, Deborah and Stott, Matthew and Rolleston, Anna K. and Ballantyne, Leah L. and Lovett, Ray and David-Chavez, Dominique and Martinez, Andrew and Sporle, Andrew and Walter, Maggie and Reading, Jeff and Carroll, Stephanie Russo},
doi = {10.1038/s41576-020-0228-x},
issn = {1471-0056},
journal = {Nature Reviews Genetics},
keywords = {Ethics,Genetic databases,Genome,Law and regulation,Population genetics,fund{\_}not{\_}ack,perspective,wide association studies},
mendeley-tags = {fund{\_}not{\_}ack,perspective},
month = {apr},
pages = {377--384},
publisher = {Nature Publishing Group},
title = {{Rights, interests and expectations: indigenous perspectives on unrestricted access to genomic data}},
url = {http://www.nature.com/articles/s41576-020-0228-x},
volume = {21},
year = {2020}
}

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