“Women in the middle”: An observational study of a generation story in Alzheimer disease in France

“Women in the middle”: An observational study of a generation story in Alzheimer disease in France. Huvent-Grelle, D., Boulanger, E., Beuscart, J. B., Martin, T., Podvin, J., & Puisieux, F. European Geriatric Medicine, 6(2):124–127, 2015.

Paper doi abstract bibtex

Background It is well known that informal care giving for Alzheimer patients can be a burden and may result in caregivers’ distress and stress. Caring for a person with Alzheimer's disease (AD) is a difficult task, which can become overwhelming. Their caregivers need attention as well. Objectives The present study examines the socio-demographic characteristics and the quality of health and life of the sandwich grandparent generation (SGP) caregivers defined as providing care to both old demented parents and young grandchildren. Study design Multicentric, prospective and observational study over a one-year period. Setting Eleven voluntary Memory Clinics across the North of France. Participants Voluntary SGP caregivers recruited in Memory Clinics who completed an oral questionnaire, during an interview one to one with a physician. Results A vast majority of our SGP caregivers were women, mean age 59 years, married, retired, described in the literature as “women in the middle”, felling stressed and not sleeping well in more than half of the cases. They had three grandchildren, mean age 7 years. The AD patient, mean age 86-years-old, was most frequently the caregiver's mother. Many SGPs had been providing their help for 5 years or even longer. Nevertheless, the SGPs considered themselves satisfied about their health, and said they had a good quality of life. Conclusion Although SGP women caregivers reported high levels of perceived burden, they considered that their health and quality of life were good.

@article{huvent-grelle_women_2015-1,
	title = {“{Women} in the middle”: {An} observational study of a generation story in {Alzheimer} disease in {France}},
	volume = {6},
	issn = {1878-7649},
	shorttitle = {“{Women} in the middle”},
	url = {http://www.sciencedirect.com/science/article/pii/S1878764914002307},
	doi = {10.1016/j.eurger.2014.10.001},
	abstract = {Background
It is well known that informal care giving for Alzheimer patients can be a burden and may result in caregivers’ distress and stress. Caring for a person with Alzheimer's disease (AD) is a difficult task, which can become overwhelming. Their caregivers need attention as well.
Objectives
The present study examines the socio-demographic characteristics and the quality of health and life of the sandwich grandparent generation (SGP) caregivers defined as providing care to both old demented parents and young grandchildren.
Study design
Multicentric, prospective and observational study over a one-year period.
Setting
Eleven voluntary Memory Clinics across the North of France.
Participants
Voluntary SGP caregivers recruited in Memory Clinics who completed an oral questionnaire, during an interview one to one with a physician.
Results
A vast majority of our SGP caregivers were women, mean age 59 years, married, retired, described in the literature as “women in the middle”, felling stressed and not sleeping well in more than half of the cases. They had three grandchildren, mean age 7 years. The AD patient, mean age 86-years-old, was most frequently the caregiver's mother. Many SGPs had been providing their help for 5 years or even longer. Nevertheless, the SGPs considered themselves satisfied about their health, and said they had a good quality of life.
Conclusion
Although SGP women caregivers reported high levels of perceived burden, they considered that their health and quality of life were good.},
	number = {2},
	urldate = {2016-03-01},
	journal = {European Geriatric Medicine},
	author = {Huvent-Grelle, D. and Boulanger, E. and Beuscart, J. B. and Martin, T. and Podvin, J. and Puisieux, F.},
	year = {2015},
	keywords = {Alzheimer Disease, Caregiver burden, Caregiving},
	pages = {124--127},
}

Downloads: 0

{"_id":"75MKKBgN243j2xFmA","bibbaseid":"huventgrelle-boulanger-beuscart-martin-podvin-puisieux-womeninthemiddleanobservationalstudyofagenerationstoryinalzheimerdiseaseinfrance-2015","author_short":["Huvent-Grelle, D.","Boulanger, E.","Beuscart, J. B.","Martin, T.","Podvin, J.","Puisieux, F."],"bibdata":{"bibtype":"article","type":"article","title":"“Women in the middle”: An observational study of a generation story in Alzheimer disease in France","volume":"6","issn":"1878-7649","shorttitle":"“Women in the middle”","url":"http://www.sciencedirect.com/science/article/pii/S1878764914002307","doi":"10.1016/j.eurger.2014.10.001","abstract":"Background It is well known that informal care giving for Alzheimer patients can be a burden and may result in caregivers’ distress and stress. Caring for a person with Alzheimer's disease (AD) is a difficult task, which can become overwhelming. Their caregivers need attention as well. Objectives The present study examines the socio-demographic characteristics and the quality of health and life of the sandwich grandparent generation (SGP) caregivers defined as providing care to both old demented parents and young grandchildren. Study design Multicentric, prospective and observational study over a one-year period. Setting Eleven voluntary Memory Clinics across the North of France. Participants Voluntary SGP caregivers recruited in Memory Clinics who completed an oral questionnaire, during an interview one to one with a physician. Results A vast majority of our SGP caregivers were women, mean age 59 years, married, retired, described in the literature as “women in the middle”, felling stressed and not sleeping well in more than half of the cases. They had three grandchildren, mean age 7 years. The AD patient, mean age 86-years-old, was most frequently the caregiver's mother. Many SGPs had been providing their help for 5 years or even longer. Nevertheless, the SGPs considered themselves satisfied about their health, and said they had a good quality of life. Conclusion Although SGP women caregivers reported high levels of perceived burden, they considered that their health and quality of life were good.","number":"2","urldate":"2016-03-01","journal":"European Geriatric Medicine","author":[{"propositions":[],"lastnames":["Huvent-Grelle"],"firstnames":["D."],"suffixes":[]},{"propositions":[],"lastnames":["Boulanger"],"firstnames":["E."],"suffixes":[]},{"propositions":[],"lastnames":["Beuscart"],"firstnames":["J.","B."],"suffixes":[]},{"propositions":[],"lastnames":["Martin"],"firstnames":["T."],"suffixes":[]},{"propositions":[],"lastnames":["Podvin"],"firstnames":["J."],"suffixes":[]},{"propositions":[],"lastnames":["Puisieux"],"firstnames":["F."],"suffixes":[]}],"year":"2015","keywords":"Alzheimer Disease, Caregiver burden, Caregiving","pages":"124–127","bibtex":"@article{huvent-grelle_women_2015-1,\n\ttitle = {“{Women} in the middle”: {An} observational study of a generation story in {Alzheimer} disease in {France}},\n\tvolume = {6},\n\tissn = {1878-7649},\n\tshorttitle = {“{Women} in the middle”},\n\turl = {http://www.sciencedirect.com/science/article/pii/S1878764914002307},\n\tdoi = {10.1016/j.eurger.2014.10.001},\n\tabstract = {Background\nIt is well known that informal care giving for Alzheimer patients can be a burden and may result in caregivers’ distress and stress. Caring for a person with Alzheimer's disease (AD) is a difficult task, which can become overwhelming. Their caregivers need attention as well.\nObjectives\nThe present study examines the socio-demographic characteristics and the quality of health and life of the sandwich grandparent generation (SGP) caregivers defined as providing care to both old demented parents and young grandchildren.\nStudy design\nMulticentric, prospective and observational study over a one-year period.\nSetting\nEleven voluntary Memory Clinics across the North of France.\nParticipants\nVoluntary SGP caregivers recruited in Memory Clinics who completed an oral questionnaire, during an interview one to one with a physician.\nResults\nA vast majority of our SGP caregivers were women, mean age 59 years, married, retired, described in the literature as “women in the middle”, felling stressed and not sleeping well in more than half of the cases. They had three grandchildren, mean age 7 years. The AD patient, mean age 86-years-old, was most frequently the caregiver's mother. Many SGPs had been providing their help for 5 years or even longer. Nevertheless, the SGPs considered themselves satisfied about their health, and said they had a good quality of life.\nConclusion\nAlthough SGP women caregivers reported high levels of perceived burden, they considered that their health and quality of life were good.},\n\tnumber = {2},\n\turldate = {2016-03-01},\n\tjournal = {European Geriatric Medicine},\n\tauthor = {Huvent-Grelle, D. and Boulanger, E. and Beuscart, J. B. and Martin, T. and Podvin, J. and Puisieux, F.},\n\tyear = {2015},\n\tkeywords = {Alzheimer Disease, Caregiver burden, Caregiving},\n\tpages = {124--127},\n}\n\n","author_short":["Huvent-Grelle, D.","Boulanger, E.","Beuscart, J. B.","Martin, T.","Podvin, J.","Puisieux, F."],"key":"huvent-grelle_women_2015-1","id":"huvent-grelle_women_2015-1","bibbaseid":"huventgrelle-boulanger-beuscart-martin-podvin-puisieux-womeninthemiddleanobservationalstudyofagenerationstoryinalzheimerdiseaseinfrance-2015","role":"author","urls":{"Paper":"http://www.sciencedirect.com/science/article/pii/S1878764914002307"},"keyword":["Alzheimer Disease","Caregiver burden","Caregiving"],"metadata":{"authorlinks":{}}},"bibtype":"article","biburl":"https://api.zotero.org/users/576834/collections/NYCBQQBB/items?key=MJNBdUsYThALl7viNVVbkecN&format=bibtex&limit=100","dataSources":["KcAAuaxski6XBszw2"],"keywords":["alzheimer disease","caregiver burden","caregiving"],"search_terms":["women","middle","observational","study","generation","story","alzheimer","disease","france","huvent-grelle","boulanger","beuscart","martin","podvin","puisieux"],"title":"“Women in the middle”: An observational study of a generation story in Alzheimer disease in France","year":2015}