Family perceptions of quality of hospice care in the nursing home. Hwang, D., Teno, J., M., Clark, M., Shield, R., Williams, C., Casarett, D., & Spence, C. Journal of pain and symptom management, 48(6):1100-1107, 12, 2014. abstract bibtex CONTEXT: Nursing homes (NHs) are increasingly the site of hospice care. High quality of care is dependent on successful NH-hospice collaboration. OBJECTIVES: To examine bereaved family members' perceptions of NH-hospice collaborations in terms of what they believe went well or could have been improved. METHODS: Focus groups were conducted with bereaved family members from five diverse geographic regions, and included participants from inner city and rural settings, with oversampling of African Americans. RESULTS: A total of 28 participants (14.8% African American, mean age 61.4 years) identified three major aspects of collaboration as important to care delivery. First, most (67.9%) voiced concerns with knowing who (NH or hospice) is responsible for which aspects of patient care. Second, nearly half (42.9%) stated concern about information coordination between the NH and hospice. Finally, 67.9% of the participants mentioned the need for hospice to advocate for high-quality care rather than their having to directly do so on behalf of their family members. CONCLUSION: The important concerns raised by bereaved family members about NH-hospice collaboration have been incorporated into the revised Family Evaluation of Hospice Care, a post-death survey used to evaluate quality of hospice care.
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title = {Family perceptions of quality of hospice care in the nursing home},
type = {article},
year = {2014},
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pages = {1100-1107},
volume = {48},
month = {12},
city = {Brown University Providence, Rhode Island, USA.; Brown University Providence, Rhode Island, USA. Electronic address: jmteno76@mac.com.; Brown University Providence, Rhode Island, USA.; Brown University Providence, Rhode Island, USA.; Brown University Prov},
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notes = {LR: 20150123; CI: Published by Elsevier Inc.; GR: 1R01HS019675/HS/AHRQ HHS/United States; GR: R01 HS019675/HS/AHRQ HHS/United States; JID: 8605836; OTO: NOTNLM; 2014/01/23 [received]; 2014/04/04 [revised]; 2014/04/29 [accepted]; 2014/05/09 [aheadofprint]; ppublish},
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abstract = {CONTEXT: Nursing homes (NHs) are increasingly the site of hospice care. High quality of care is dependent on successful NH-hospice collaboration. OBJECTIVES: To examine bereaved family members' perceptions of NH-hospice collaborations in terms of what they believe went well or could have been improved. METHODS: Focus groups were conducted with bereaved family members from five diverse geographic regions, and included participants from inner city and rural settings, with oversampling of African Americans. RESULTS: A total of 28 participants (14.8% African American, mean age 61.4 years) identified three major aspects of collaboration as important to care delivery. First, most (67.9%) voiced concerns with knowing who (NH or hospice) is responsible for which aspects of patient care. Second, nearly half (42.9%) stated concern about information coordination between the NH and hospice. Finally, 67.9% of the participants mentioned the need for hospice to advocate for high-quality care rather than their having to directly do so on behalf of their family members. CONCLUSION: The important concerns raised by bereaved family members about NH-hospice collaboration have been incorporated into the revised Family Evaluation of Hospice Care, a post-death survey used to evaluate quality of hospice care.},
bibtype = {article},
author = {Hwang, D and Teno, J M and Clark, M and Shield, R and Williams, C and Casarett, D and Spence, C},
journal = {Journal of pain and symptom management},
number = {6}
}
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