Communication and decision-making regarding children with critical cardiac disease: a systematic review of family preferences. Neubauer, K., Williams, E. P., Donohue, P. K., & Boss, R. D. Cardiology in the Young, 28(10):1–5. Paper doi abstract bibtex Critical heart disease in the pediatric population is associated with high morbidity and mortality. Research around the most effective communication and decision-making strategies is lacking. This systematic review aims to summarise what is known about parent preference for communication and decision-making in children with critical heart disease. Database searches included key words such as family, pediatric heart disease, communication, and decision-making. A total of 10 studies fit our inclusion criteria: nine were qualitative studies with parent interviews and one study was quantitative with a parent survey. We found three main themes regarding physician–parent communication and decision-making in the context of paediatric heart disease: (1) amount, timing, and content of information provided to parents; (2) helpful physician characteristics and communication styles; and (3) reinforcing the support circle for families.
@article{neubauer_communication_nodate,
title = {Communication and decision-making regarding children with critical cardiac disease: a systematic review of family preferences},
volume = {28},
issn = {1047-9511, 1467-1107},
shorttitle = {Communication and decision-making regarding children with critical cardiac disease},
url = {https://www.cambridge.org/core/journals/cardiology-in-the-young/article/communication-and-decisionmaking-regarding-children-with-critical-cardiac-disease-a-systematic-review-of-family-preferences/8167B339FA132A31E887EC36BA2A7A5D},
doi = {10.1017/S1047951118001233},
abstract = {Critical heart disease in the pediatric population is associated with high morbidity and mortality. Research around the most effective communication and decision-making strategies is lacking. This systematic review aims to summarise what is known about parent preference for communication and decision-making in children with critical heart disease. Database searches included key words such as family, pediatric heart disease, communication, and decision-making. A total of 10 studies fit our inclusion criteria: nine were qualitative studies with parent interviews and one study was quantitative with a parent survey. We found three main themes regarding physician–parent communication and decision-making in the context of paediatric heart disease: (1) amount, timing, and content of information provided to parents; (2) helpful physician characteristics and communication styles; and (3) reinforcing the support circle for families.},
language = {en},
number = {10},
urldate = {2018-08-06},
journal = {Cardiology in the Young},
author = {Neubauer, Kathryn and Williams, Erin P. and Donohue, Pamela K. and Boss, Renee D.},
keywords = {Berman, Family, children, communication, decision-making, heart disease},
pages = {1--5}
}
Downloads: 0
{"_id":"jkLgEZdMzcxHNfCZi","bibbaseid":"neubauer-williams-donohue-boss-communicationanddecisionmakingregardingchildrenwithcriticalcardiacdiseaseasystematicreviewoffamilypreferences","authorIDs":[],"author_short":["Neubauer, K.","Williams, E. P.","Donohue, P. K.","Boss, R. D."],"bibdata":{"bibtype":"article","type":"article","title":"Communication and decision-making regarding children with critical cardiac disease: a systematic review of family preferences","volume":"28","issn":"1047-9511, 1467-1107","shorttitle":"Communication and decision-making regarding children with critical cardiac disease","url":"https://www.cambridge.org/core/journals/cardiology-in-the-young/article/communication-and-decisionmaking-regarding-children-with-critical-cardiac-disease-a-systematic-review-of-family-preferences/8167B339FA132A31E887EC36BA2A7A5D","doi":"10.1017/S1047951118001233","abstract":"Critical heart disease in the pediatric population is associated with high morbidity and mortality. Research around the most effective communication and decision-making strategies is lacking. This systematic review aims to summarise what is known about parent preference for communication and decision-making in children with critical heart disease. Database searches included key words such as family, pediatric heart disease, communication, and decision-making. A total of 10 studies fit our inclusion criteria: nine were qualitative studies with parent interviews and one study was quantitative with a parent survey. We found three main themes regarding physician–parent communication and decision-making in the context of paediatric heart disease: (1) amount, timing, and content of information provided to parents; (2) helpful physician characteristics and communication styles; and (3) reinforcing the support circle for families.","language":"en","number":"10","urldate":"2018-08-06","journal":"Cardiology in the Young","author":[{"propositions":[],"lastnames":["Neubauer"],"firstnames":["Kathryn"],"suffixes":[]},{"propositions":[],"lastnames":["Williams"],"firstnames":["Erin","P."],"suffixes":[]},{"propositions":[],"lastnames":["Donohue"],"firstnames":["Pamela","K."],"suffixes":[]},{"propositions":[],"lastnames":["Boss"],"firstnames":["Renee","D."],"suffixes":[]}],"keywords":"Berman, Family, children, communication, decision-making, heart disease","pages":"1–5","bibtex":"@article{neubauer_communication_nodate,\n\ttitle = {Communication and decision-making regarding children with critical cardiac disease: a systematic review of family preferences},\n\tvolume = {28},\n\tissn = {1047-9511, 1467-1107},\n\tshorttitle = {Communication and decision-making regarding children with critical cardiac disease},\n\turl = {https://www.cambridge.org/core/journals/cardiology-in-the-young/article/communication-and-decisionmaking-regarding-children-with-critical-cardiac-disease-a-systematic-review-of-family-preferences/8167B339FA132A31E887EC36BA2A7A5D},\n\tdoi = {10.1017/S1047951118001233},\n\tabstract = {Critical heart disease in the pediatric population is associated with high morbidity and mortality. Research around the most effective communication and decision-making strategies is lacking. This systematic review aims to summarise what is known about parent preference for communication and decision-making in children with critical heart disease. Database searches included key words such as family, pediatric heart disease, communication, and decision-making. A total of 10 studies fit our inclusion criteria: nine were qualitative studies with parent interviews and one study was quantitative with a parent survey. We found three main themes regarding physician–parent communication and decision-making in the context of paediatric heart disease: (1) amount, timing, and content of information provided to parents; (2) helpful physician characteristics and communication styles; and (3) reinforcing the support circle for families.},\n\tlanguage = {en},\n\tnumber = {10},\n\turldate = {2018-08-06},\n\tjournal = {Cardiology in the Young},\n\tauthor = {Neubauer, Kathryn and Williams, Erin P. and Donohue, Pamela K. and Boss, Renee D.},\n\tkeywords = {Berman, Family, children, communication, decision-making, heart disease},\n\tpages = {1--5}\n}\n\n","author_short":["Neubauer, K.","Williams, E. P.","Donohue, P. K.","Boss, R. D."],"key":"neubauer_communication_nodate","id":"neubauer_communication_nodate","bibbaseid":"neubauer-williams-donohue-boss-communicationanddecisionmakingregardingchildrenwithcriticalcardiacdiseaseasystematicreviewoffamilypreferences","role":"author","urls":{"Paper":"https://www.cambridge.org/core/journals/cardiology-in-the-young/article/communication-and-decisionmaking-regarding-children-with-critical-cardiac-disease-a-systematic-review-of-family-preferences/8167B339FA132A31E887EC36BA2A7A5D"},"keyword":["Berman","Family","children","communication","decision-making","heart disease"],"downloads":0},"bibtype":"article","biburl":"https://api.zotero.org/groups/2341479/items?key=y7vbq1WZ3A9zGUEweGXQXUvX&format=bibtex&limit=100","creationDate":"2019-07-18T15:38:25.734Z","downloads":0,"keywords":["berman","family","children","communication","decision-making","heart disease"],"search_terms":["communication","decision","making","regarding","children","critical","cardiac","disease","systematic","review","family","preferences","neubauer","williams","donohue","boss"],"title":"Communication and decision-making regarding children with critical cardiac disease: a systematic review of family preferences","year":null,"dataSources":["YKXE62fKQu4jz6T33"]}