Communication and decision-making regarding children with critical cardiac disease: a systematic review of family preferences. Neubauer, K., Williams, E. P., Donohue, P. K., & Boss, R. D. Cardiology in the Young, 28(10):1–5.
Communication and decision-making regarding children with critical cardiac disease: a systematic review of family preferences [link]Paper  doi  abstract   bibtex   
Critical heart disease in the pediatric population is associated with high morbidity and mortality. Research around the most effective communication and decision-making strategies is lacking. This systematic review aims to summarise what is known about parent preference for communication and decision-making in children with critical heart disease. Database searches included key words such as family, pediatric heart disease, communication, and decision-making. A total of 10 studies fit our inclusion criteria: nine were qualitative studies with parent interviews and one study was quantitative with a parent survey. We found three main themes regarding physician–parent communication and decision-making in the context of paediatric heart disease: (1) amount, timing, and content of information provided to parents; (2) helpful physician characteristics and communication styles; and (3) reinforcing the support circle for families.
@article{neubauer_communication_nodate,
	title = {Communication and decision-making regarding children with critical cardiac disease: a systematic review of family preferences},
	volume = {28},
	issn = {1047-9511, 1467-1107},
	shorttitle = {Communication and decision-making regarding children with critical cardiac disease},
	url = {https://www.cambridge.org/core/journals/cardiology-in-the-young/article/communication-and-decisionmaking-regarding-children-with-critical-cardiac-disease-a-systematic-review-of-family-preferences/8167B339FA132A31E887EC36BA2A7A5D},
	doi = {10.1017/S1047951118001233},
	abstract = {Critical heart disease in the pediatric population is associated with high morbidity and mortality. Research around the most effective communication and decision-making strategies is lacking. This systematic review aims to summarise what is known about parent preference for communication and decision-making in children with critical heart disease. Database searches included key words such as family, pediatric heart disease, communication, and decision-making. A total of 10 studies fit our inclusion criteria: nine were qualitative studies with parent interviews and one study was quantitative with a parent survey. We found three main themes regarding physician–parent communication and decision-making in the context of paediatric heart disease: (1) amount, timing, and content of information provided to parents; (2) helpful physician characteristics and communication styles; and (3) reinforcing the support circle for families.},
	language = {en},
	number = {10},
	urldate = {2018-08-06},
	journal = {Cardiology in the Young},
	author = {Neubauer, Kathryn and Williams, Erin P. and Donohue, Pamela K. and Boss, Renee D.},
	keywords = {Berman, Family, children, communication, decision-making, heart disease},
	pages = {1--5}
}
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