Innovation by patients with rare diseases and chronic needs. Oliveira, P., Zejnilovic, L., Canhão, H., & von Hippel, E. Orphanet Journal of Rare Diseases, 10(1):41, April, 2015. ZSCC: 0000063
Innovation by patients with rare diseases and chronic needs [link]Paper  doi  abstract   bibtex   
We provide the first empirical exploration of disease-related innovation by patients and their caregivers. Our aims were to explore to what degree do patients develop innovative solutions; how many of these are unique developments; and do these solutions have positive perceived impact on the patients’ overall quality of life? In addition, we explored the factors associated with patient innovation development, and sharing of the solutions that the patients developed.
@article{oliveira_innovation_2015,
	title = {Innovation by patients with rare diseases and chronic needs},
	volume = {10},
	issn = {1750-1172},
	url = {https://doi.org/10.1186/s13023-015-0257-2},
	doi = {10.1186/s13023-015-0257-2},
	abstract = {We provide the first empirical exploration of disease-related innovation by patients and their caregivers. Our aims were to explore to what degree do patients develop innovative solutions; how many of these are unique developments; and do these solutions have positive perceived impact on the patients’ overall quality of life? In addition, we explored the factors associated with patient innovation development, and sharing of the solutions that the patients developed.},
	number = {1},
	urldate = {2021-03-18},
	journal = {Orphanet Journal of Rare Diseases},
	author = {Oliveira, Pedro and Zejnilovic, Leid and Canhão, Helena and von Hippel, Eric},
	month = apr,
	year = {2015},
	note = {ZSCC: 0000063},
	keywords = {Diffusion of Innovation, Patient Innovation, Rare Diseases, User Innovation in Health},
	pages = {41},
}

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