Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US. Sanderson, S. C., Brothers, K. B., Mercaldo, N. D., Clayton, E. W., Antommaria, A. H. M., Aufox, S. A., Brilliant, M. H., Campos, D., Carrell, D. S., Connolly, J., Conway, P., Fullerton, S. M., Garrison, N. A., Horowitz, C. R., Jarvik, G. P., Kaufman, D., Kitchner, T. E., Li, R., Ludman, E. J., McCarty, C. A., McCormick, J. B., McManus, V. D., Myers, M. F., Scrol, A., Williams, J. L., Shrubsole, M. J., Schildcrout, J. S., Smith, M. E., & Holm, I. A. The American Journal of Human Genetics, 100(3):414–427, March, 2017. Paper doi bibtex @article{sanderson_public_2017,
title = {Public {Attitudes} toward {Consent} and {Data} {Sharing} in {Biobank} {Research}: {A} {Large} {Multi}-site {Experimental} {Survey} in the {US}},
volume = {100},
issn = {00029297},
shorttitle = {Public {Attitudes} toward {Consent} and {Data} {Sharing} in {Biobank} {Research}},
url = {http://linkinghub.elsevier.com/retrieve/pii/S0002929717300216},
doi = {10.1016/j.ajhg.2017.01.021},
language = {en},
number = {3},
urldate = {2017-08-14TZ},
journal = {The American Journal of Human Genetics},
author = {Sanderson, Saskia C. and Brothers, Kyle B. and Mercaldo, Nathaniel D. and Clayton, Ellen Wright and Antommaria, Armand H. Matheny and Aufox, Sharon A. and Brilliant, Murray H. and Campos, Diego and Carrell, David S. and Connolly, John and Conway, Pat and Fullerton, Stephanie M. and Garrison, Nanibaa’ A. and Horowitz, Carol R. and Jarvik, Gail P. and Kaufman, David and Kitchner, Terrie E. and Li, Rongling and Ludman, Evette J. and McCarty, Catherine A. and McCormick, Jennifer B. and McManus, Valerie D. and Myers, Melanie F. and Scrol, Aaron and Williams, Janet L. and Shrubsole, Martha J. and Schildcrout, Jonathan S. and Smith, Maureen E. and Holm, Ingrid A.},
month = mar,
year = {2017},
pages = {414--427}
}
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