@article{RN6049,
   author = {Schuster, A. L. and Crossnohere, N. L. and Bachini, M. and Blair, C. K. and Carpten, J. D. and Claus, E. B. and Colditz, G. A. and Ding, L. and Drake, B. F. and Fields, R. C. and Janeway, K. A. and Kwan, B. M. and Lenz, H. J. and Ma, Q. and Mishra, S. I. and Paskett, E. D. and Rebbeck, T. R. and Ricker, C. and Stern, M. C. and Sussman, A. L. and Tiner, J. C. and Trent, J. M. and Verhaak, R. G. and Wagle, N. and Willman, C. and Bridges, J. F.},
   title = {Priorities to Promote Participant Engagement in the Participant Engagement and Cancer Genome Sequencing (PE-CGS) Network},
   journal = {Cancer Epidemiol Biomarkers Prev},
   volume = {32},
   number = {4},
   pages = {487-495},
   note = {1538-7755
Schuster, Anne Lr
Orcid: 0000-0003-4391-1712
Crossnohere, Norah L
Orcid: 0000-0002-2811-1330
Bachini, Melinda
Orcid: 0000-0001-6850-2929
Blair, Cindy K
Orcid: 0000-0001-6698-678x
Carpten, John D
Orcid: 0000-0002-6862-2821
Claus, Elizabeth B
Orcid: 0000-0001-9867-8124
Colditz, Graham A
Orcid: 0000-0002-7307-0291
Ding, Li
Orcid: 0000-0003-1517-2975
Drake, Bettina F
Orcid: 0000-0001-9340-5848
Fields, Ryan C
Orcid: 0000-0001-6176-8943
Janeway, Katherine A
Orcid: 0000-0001-6000-3594
Kwan, Bethany M
Orcid: 0000-0002-4013-5618
Lenz, Heinz-Josef
Orcid: 0000-0003-2178-9568
Ma, Qin
Orcid: 0000-0002-3264-8392
Mishra, Shiraz I
Orcid: 0000-0002-4783-0939
Paskett, Electra D
Orcid: 0000-0002-8247-8299
Rebbeck, Timothy R
Orcid: 0000-0002-4799-1900
Ricker, Charité
Orcid: 0000-0002-0620-9345
Stern, Mariana C
Orcid: 0000-0001-9777-4683
Sussman, Andrew L
Orcid: 0000-0002-2594-8776
Tiner, Jessica C
Orcid: 0000-0001-7183-4094
Trent, Jeffrey M
Orcid: 0000-0003-0183-4202
Verhaak, Roel Gw
Orcid: 0000-0003-2773-0436
Wagle, Nikhil
Orcid: 0000-0003-3332-9438
Willman, Cheryl
Orcid: 0000-0002-1524-2622
Bridges, John Fp
Orcid: 0000-0002-3082-5535
Participant Engagement and Cancer Genome Sequencing (PE-CGS) Network
U2C CA252971/CA/NCI NIH HHS/United States
U2C CA252981/CA/NCI NIH HHS/United States
U2C CA252979/CA/NCI NIH HHS/United States
U2C CA252973/CA/NCI NIH HHS/United States
U2C CA252974/CA/NCI NIH HHS/United States
P30 CA033572/CA/NCI NIH HHS/United States
U24 CA252977/CA/NCI NIH HHS/United States
Journal Article
Research Support, N.I.H., Extramural
United States
2023/02/16
Cancer Epidemiol Biomarkers Prev. 2023 Apr 3;32(4):487-495. doi: 10.1158/1055-9965.EPI-22-0356.},
   abstract = {BACKGROUND: Engaging diverse populations in cancer genomics research is of critical importance and is a fundamental goal of the NCI Participant Engagement and Cancer Genome Sequencing (PE-CGS) Network. Established as part of the Cancer Moonshot, PE-CGS is a consortium of stakeholders including clinicians, scientists, genetic counselors, and representatives of potential study participants and their communities. Participant engagement is an ongoing, bidirectional, and mutually beneficial interaction between study participants and researchers. PE-CGS sought to set priorities in participant engagement for conducting the network's research. METHODS: PE-CGS deliberatively engaged its stakeholders in the following four-phase process to set the network's research priorities in participant engagement: (i) a brainstorming exercise to elicit potential priorities; (ii) a 2-day virtual meeting to discuss priorities; (iii) recommendations from the PE-CGS External Advisory Panel to refine priorities; and (iv) a virtual meeting to set priorities. RESULTS: Nearly 150 PE-CGS stakeholders engaged in the process. Five priorities were set: (i) tailor education and communication materials for participants throughout the research process; (ii) identify measures of participant engagement; (iii) identify optimal participant engagement strategies; (iv) understand cancer disparities in the context of cancer genomics research; and (v) personalize the return of genomics findings to participants. CONCLUSIONS: PE-CGS is pursuing these priorities to meaningfully engage diverse and underrepresented patients with cancer and posttreatment cancer survivors as participants in cancer genomics research and, subsequently, generate new discoveries. IMPACT: Data from PE-CGS will be shared with the broader scientific community in a manner consistent with participant informed consent and community agreement.},
   keywords = {Humans
*Informed Consent
*Neoplasms/genetics
Motivation
Genomics
Educational Status},
   ISSN = {1055-9965 (Print)
1055-9965},
   DOI = {10.1158/1055-9965.Epi-22-0356},
   year = {2023},
   type = {Journal Article}
}

{"_id":"k5ATWYTEjWSE88gbq","bibbaseid":"schuster-crossnohere-bachini-blair-carpten-claus-colditz-ding-etal-prioritiestopromoteparticipantengagementintheparticipantengagementandcancergenomesequencingpecgsnetwork-2023","author_short":["Schuster, A. L.","Crossnohere, N. L.","Bachini, M.","Blair, C. K.","Carpten, J. D.","Claus, E. B.","Colditz, G. A.","Ding, L.","Drake, B. F.","Fields, R. C.","Janeway, K. A.","Kwan, B. M.","Lenz, H. J.","Ma, Q.","Mishra, S. I.","Paskett, E. D.","Rebbeck, T. R.","Ricker, C.","Stern, M. C.","Sussman, A. L.","Tiner, J. C.","Trent, J. M.","Verhaak, R. G.","Wagle, N.","Willman, C.","Bridges, J. F."],"bibdata":{"bibtype":"article","type":"Journal Article","author":[{"propositions":[],"lastnames":["Schuster"],"firstnames":["A.","L."],"suffixes":[]},{"propositions":[],"lastnames":["Crossnohere"],"firstnames":["N.","L."],"suffixes":[]},{"propositions":[],"lastnames":["Bachini"],"firstnames":["M."],"suffixes":[]},{"propositions":[],"lastnames":["Blair"],"firstnames":["C.","K."],"suffixes":[]},{"propositions":[],"lastnames":["Carpten"],"firstnames":["J.","D."],"suffixes":[]},{"propositions":[],"lastnames":["Claus"],"firstnames":["E.","B."],"suffixes":[]},{"propositions":[],"lastnames":["Colditz"],"firstnames":["G.","A."],"suffixes":[]},{"propositions":[],"lastnames":["Ding"],"firstnames":["L."],"suffixes":[]},{"propositions":[],"lastnames":["Drake"],"firstnames":["B.","F."],"suffixes":[]},{"propositions":[],"lastnames":["Fields"],"firstnames":["R.","C."],"suffixes":[]},{"propositions":[],"lastnames":["Janeway"],"firstnames":["K.","A."],"suffixes":[]},{"propositions":[],"lastnames":["Kwan"],"firstnames":["B.","M."],"suffixes":[]},{"propositions":[],"lastnames":["Lenz"],"firstnames":["H.","J."],"suffixes":[]},{"propositions":[],"lastnames":["Ma"],"firstnames":["Q."],"suffixes":[]},{"propositions":[],"lastnames":["Mishra"],"firstnames":["S.","I."],"suffixes":[]},{"propositions":[],"lastnames":["Paskett"],"firstnames":["E.","D."],"suffixes":[]},{"propositions":[],"lastnames":["Rebbeck"],"firstnames":["T.","R."],"suffixes":[]},{"propositions":[],"lastnames":["Ricker"],"firstnames":["C."],"suffixes":[]},{"propositions":[],"lastnames":["Stern"],"firstnames":["M.","C."],"suffixes":[]},{"propositions":[],"lastnames":["Sussman"],"firstnames":["A.","L."],"suffixes":[]},{"propositions":[],"lastnames":["Tiner"],"firstnames":["J.","C."],"suffixes":[]},{"propositions":[],"lastnames":["Trent"],"firstnames":["J.","M."],"suffixes":[]},{"propositions":[],"lastnames":["Verhaak"],"firstnames":["R.","G."],"suffixes":[]},{"propositions":[],"lastnames":["Wagle"],"firstnames":["N."],"suffixes":[]},{"propositions":[],"lastnames":["Willman"],"firstnames":["C."],"suffixes":[]},{"propositions":[],"lastnames":["Bridges"],"firstnames":["J.","F."],"suffixes":[]}],"title":"Priorities to Promote Participant Engagement in the Participant Engagement and Cancer Genome Sequencing (PE-CGS) Network","journal":"Cancer Epidemiol Biomarkers Prev","volume":"32","number":"4","pages":"487-495","note":"1538-7755 Schuster, Anne Lr Orcid: 0000-0003-4391-1712 Crossnohere, Norah L Orcid: 0000-0002-2811-1330 Bachini, Melinda Orcid: 0000-0001-6850-2929 Blair, Cindy K Orcid: 0000-0001-6698-678x Carpten, John D Orcid: 0000-0002-6862-2821 Claus, Elizabeth B Orcid: 0000-0001-9867-8124 Colditz, Graham A Orcid: 0000-0002-7307-0291 Ding, Li Orcid: 0000-0003-1517-2975 Drake, Bettina F Orcid: 0000-0001-9340-5848 Fields, Ryan C Orcid: 0000-0001-6176-8943 Janeway, Katherine A Orcid: 0000-0001-6000-3594 Kwan, Bethany M Orcid: 0000-0002-4013-5618 Lenz, Heinz-Josef Orcid: 0000-0003-2178-9568 Ma, Qin Orcid: 0000-0002-3264-8392 Mishra, Shiraz I Orcid: 0000-0002-4783-0939 Paskett, Electra D Orcid: 0000-0002-8247-8299 Rebbeck, Timothy R Orcid: 0000-0002-4799-1900 Ricker, Charité Orcid: 0000-0002-0620-9345 Stern, Mariana C Orcid: 0000-0001-9777-4683 Sussman, Andrew L Orcid: 0000-0002-2594-8776 Tiner, Jessica C Orcid: 0000-0001-7183-4094 Trent, Jeffrey M Orcid: 0000-0003-0183-4202 Verhaak, Roel Gw Orcid: 0000-0003-2773-0436 Wagle, Nikhil Orcid: 0000-0003-3332-9438 Willman, Cheryl Orcid: 0000-0002-1524-2622 Bridges, John Fp Orcid: 0000-0002-3082-5535 Participant Engagement and Cancer Genome Sequencing (PE-CGS) Network U2C CA252971/CA/NCI NIH HHS/United States U2C CA252981/CA/NCI NIH HHS/United States U2C CA252979/CA/NCI NIH HHS/United States U2C CA252973/CA/NCI NIH HHS/United States U2C CA252974/CA/NCI NIH HHS/United States P30 CA033572/CA/NCI NIH HHS/United States U24 CA252977/CA/NCI NIH HHS/United States Journal Article Research Support, N.I.H., Extramural United States 2023/02/16 Cancer Epidemiol Biomarkers Prev. 2023 Apr 3;32(4):487-495. doi: 10.1158/1055-9965.EPI-22-0356.","abstract":"BACKGROUND: Engaging diverse populations in cancer genomics research is of critical importance and is a fundamental goal of the NCI Participant Engagement and Cancer Genome Sequencing (PE-CGS) Network. Established as part of the Cancer Moonshot, PE-CGS is a consortium of stakeholders including clinicians, scientists, genetic counselors, and representatives of potential study participants and their communities. Participant engagement is an ongoing, bidirectional, and mutually beneficial interaction between study participants and researchers. PE-CGS sought to set priorities in participant engagement for conducting the network's research. METHODS: PE-CGS deliberatively engaged its stakeholders in the following four-phase process to set the network's research priorities in participant engagement: (i) a brainstorming exercise to elicit potential priorities; (ii) a 2-day virtual meeting to discuss priorities; (iii) recommendations from the PE-CGS External Advisory Panel to refine priorities; and (iv) a virtual meeting to set priorities. RESULTS: Nearly 150 PE-CGS stakeholders engaged in the process. Five priorities were set: (i) tailor education and communication materials for participants throughout the research process; (ii) identify measures of participant engagement; (iii) identify optimal participant engagement strategies; (iv) understand cancer disparities in the context of cancer genomics research; and (v) personalize the return of genomics findings to participants. CONCLUSIONS: PE-CGS is pursuing these priorities to meaningfully engage diverse and underrepresented patients with cancer and posttreatment cancer survivors as participants in cancer genomics research and, subsequently, generate new discoveries. IMPACT: Data from PE-CGS will be shared with the broader scientific community in a manner consistent with participant informed consent and community agreement.","keywords":"Humans *Informed Consent *Neoplasms/genetics Motivation Genomics Educational Status","issn":"1055-9965 (Print) 1055-9965","doi":"10.1158/1055-9965.Epi-22-0356","year":"2023","bibtex":"@article{RN6049,\n author = {Schuster, A. L. and Crossnohere, N. L. and Bachini, M. and Blair, C. K. and Carpten, J. D. and Claus, E. B. and Colditz, G. A. and Ding, L. and Drake, B. F. and Fields, R. C. and Janeway, K. A. and Kwan, B. M. and Lenz, H. J. and Ma, Q. and Mishra, S. I. and Paskett, E. D. and Rebbeck, T. R. and Ricker, C. and Stern, M. C. and Sussman, A. L. and Tiner, J. C. and Trent, J. M. and Verhaak, R. G. and Wagle, N. and Willman, C. and Bridges, J. F.},\n title = {Priorities to Promote Participant Engagement in the Participant Engagement and Cancer Genome Sequencing (PE-CGS) Network},\n journal = {Cancer Epidemiol Biomarkers Prev},\n volume = {32},\n number = {4},\n pages = {487-495},\n note = {1538-7755\nSchuster, Anne Lr\nOrcid: 0000-0003-4391-1712\nCrossnohere, Norah L\nOrcid: 0000-0002-2811-1330\nBachini, Melinda\nOrcid: 0000-0001-6850-2929\nBlair, Cindy K\nOrcid: 0000-0001-6698-678x\nCarpten, John D\nOrcid: 0000-0002-6862-2821\nClaus, Elizabeth B\nOrcid: 0000-0001-9867-8124\nColditz, Graham A\nOrcid: 0000-0002-7307-0291\nDing, Li\nOrcid: 0000-0003-1517-2975\nDrake, Bettina F\nOrcid: 0000-0001-9340-5848\nFields, Ryan C\nOrcid: 0000-0001-6176-8943\nJaneway, Katherine A\nOrcid: 0000-0001-6000-3594\nKwan, Bethany M\nOrcid: 0000-0002-4013-5618\nLenz, Heinz-Josef\nOrcid: 0000-0003-2178-9568\nMa, Qin\nOrcid: 0000-0002-3264-8392\nMishra, Shiraz I\nOrcid: 0000-0002-4783-0939\nPaskett, Electra D\nOrcid: 0000-0002-8247-8299\nRebbeck, Timothy R\nOrcid: 0000-0002-4799-1900\nRicker, Charité\nOrcid: 0000-0002-0620-9345\nStern, Mariana C\nOrcid: 0000-0001-9777-4683\nSussman, Andrew L\nOrcid: 0000-0002-2594-8776\nTiner, Jessica C\nOrcid: 0000-0001-7183-4094\nTrent, Jeffrey M\nOrcid: 0000-0003-0183-4202\nVerhaak, Roel Gw\nOrcid: 0000-0003-2773-0436\nWagle, Nikhil\nOrcid: 0000-0003-3332-9438\nWillman, Cheryl\nOrcid: 0000-0002-1524-2622\nBridges, John Fp\nOrcid: 0000-0002-3082-5535\nParticipant Engagement and Cancer Genome Sequencing (PE-CGS) Network\nU2C CA252971/CA/NCI NIH HHS/United States\nU2C CA252981/CA/NCI NIH HHS/United States\nU2C CA252979/CA/NCI NIH HHS/United States\nU2C CA252973/CA/NCI NIH HHS/United States\nU2C CA252974/CA/NCI NIH HHS/United States\nP30 CA033572/CA/NCI NIH HHS/United States\nU24 CA252977/CA/NCI NIH HHS/United States\nJournal Article\nResearch Support, N.I.H., Extramural\nUnited States\n2023/02/16\nCancer Epidemiol Biomarkers Prev. 2023 Apr 3;32(4):487-495. doi: 10.1158/1055-9965.EPI-22-0356.},\n abstract = {BACKGROUND: Engaging diverse populations in cancer genomics research is of critical importance and is a fundamental goal of the NCI Participant Engagement and Cancer Genome Sequencing (PE-CGS) Network. Established as part of the Cancer Moonshot, PE-CGS is a consortium of stakeholders including clinicians, scientists, genetic counselors, and representatives of potential study participants and their communities. Participant engagement is an ongoing, bidirectional, and mutually beneficial interaction between study participants and researchers. PE-CGS sought to set priorities in participant engagement for conducting the network's research. METHODS: PE-CGS deliberatively engaged its stakeholders in the following four-phase process to set the network's research priorities in participant engagement: (i) a brainstorming exercise to elicit potential priorities; (ii) a 2-day virtual meeting to discuss priorities; (iii) recommendations from the PE-CGS External Advisory Panel to refine priorities; and (iv) a virtual meeting to set priorities. RESULTS: Nearly 150 PE-CGS stakeholders engaged in the process. Five priorities were set: (i) tailor education and communication materials for participants throughout the research process; (ii) identify measures of participant engagement; (iii) identify optimal participant engagement strategies; (iv) understand cancer disparities in the context of cancer genomics research; and (v) personalize the return of genomics findings to participants. CONCLUSIONS: PE-CGS is pursuing these priorities to meaningfully engage diverse and underrepresented patients with cancer and posttreatment cancer survivors as participants in cancer genomics research and, subsequently, generate new discoveries. IMPACT: Data from PE-CGS will be shared with the broader scientific community in a manner consistent with participant informed consent and community agreement.},\n keywords = {Humans\n*Informed Consent\n*Neoplasms/genetics\nMotivation\nGenomics\nEducational Status},\n ISSN = {1055-9965 (Print)\n1055-9965},\n DOI = {10.1158/1055-9965.Epi-22-0356},\n year = {2023},\n type = {Journal Article}\n}\n\n","author_short":["Schuster, A. L.","Crossnohere, N. L.","Bachini, M.","Blair, C. K.","Carpten, J. D.","Claus, E. B.","Colditz, G. A.","Ding, L.","Drake, B. F.","Fields, R. C.","Janeway, K. A.","Kwan, B. M.","Lenz, H. J.","Ma, Q.","Mishra, S. I.","Paskett, E. D.","Rebbeck, T. R.","Ricker, C.","Stern, M. C.","Sussman, A. L.","Tiner, J. C.","Trent, J. M.","Verhaak, R. G.","Wagle, N.","Willman, C.","Bridges, J. F."],"key":"RN6049","id":"RN6049","bibbaseid":"schuster-crossnohere-bachini-blair-carpten-claus-colditz-ding-etal-prioritiestopromoteparticipantengagementintheparticipantengagementandcancergenomesequencingpecgsnetwork-2023","role":"author","urls":{},"keyword":["Humans *Informed Consent *Neoplasms/genetics Motivation Genomics Educational Status"],"metadata":{"authorlinks":{}}},"bibtype":"article","biburl":"https://verhaaklab.com/files/verhaak.bib","dataSources":["iFXeF2qjAL2y5TeTz"],"keywords":["humans *informed consent *neoplasms/genetics motivation genomics educational status"],"search_terms":["priorities","promote","participant","engagement","participant","engagement","cancer","genome","sequencing","cgs","network","schuster","crossnohere","bachini","blair","carpten","claus","colditz","ding","drake","fields","janeway","kwan","lenz","ma","mishra","paskett","rebbeck","ricker","stern","sussman","tiner","trent","verhaak","wagle","willman","bridges"],"title":"Priorities to Promote Participant Engagement in the Participant Engagement and Cancer Genome Sequencing (PE-CGS) Network","year":2023}