An Aotearoa New Zealand survey of the impact and diagnostic delay for endometriosis and chronic pelvic pain. Tewhaiti-Smith, J., Semprini, A., Bush, D., Anderson, A., Eathorne, A., Johnson, N., Girling, J., East, M., Marriott, J., & Armour, M. Scientific Reports, 12(1):4425, March, 2022. doi abstract bibtex Chronic pelvic pain (CPP) causes important negative effects on quality of life. Endometriosis is the most common cause of CPP in females, and diagnostic delay is over six years internationally. Data remain scarce for CPP impact or diagnostic delay in Aotearoa New Zealand. This study used an online survey to explore the impact of CPP on various life domains for those aged over 18. Additionally, for those with an endometriosis diagnosis, diagnostic delay and factors affecting this over time were explored. There were 800 respondent (620 with self-reported endometriosis). CPP symptoms, irrespective of final diagnosis, started prior to age 20 and negatively impacted multiple life domains including employment, education, and relationships. Mean diagnostic delay for those with endometriosis was 8.7 years, including 2.9 years between symptom onset and first presentation and 5.8 years between first presentation and diagnosis. Five doctors on average were seen prior to diagnosis. However, there was a reduction in the interval between first presentation and diagnosis over time, from 8.4 years for those presenting before 2005, to two years for those presenting after 2012. While diagnostic delay is decreasing, CPP, irrespective of aetiology, continues to have a significant negative impact on the lives of those affected.
@article{tewhaiti-smith_aotearoa_2022,
title = {An {Aotearoa} {New} {Zealand} survey of the impact and diagnostic delay for endometriosis and chronic pelvic pain},
volume = {12},
issn = {2045-2322},
doi = {10.1038/s41598-022-08464-x},
abstract = {Chronic pelvic pain (CPP) causes important negative effects on quality of life. Endometriosis is the most common cause of CPP in females, and diagnostic delay is over six years internationally. Data remain scarce for CPP impact or diagnostic delay in Aotearoa New Zealand. This study used an online survey to explore the impact of CPP on various life domains for those aged over 18. Additionally, for those with an endometriosis diagnosis, diagnostic delay and factors affecting this over time were explored. There were 800 respondent (620 with self-reported endometriosis). CPP symptoms, irrespective of final diagnosis, started prior to age 20 and negatively impacted multiple life domains including employment, education, and relationships. Mean diagnostic delay for those with endometriosis was 8.7 years, including 2.9 years between symptom onset and first presentation and 5.8 years between first presentation and diagnosis. Five doctors on average were seen prior to diagnosis. However, there was a reduction in the interval between first presentation and diagnosis over time, from 8.4 years for those presenting before 2005, to two years for those presenting after 2012. While diagnostic delay is decreasing, CPP, irrespective of aetiology, continues to have a significant negative impact on the lives of those affected.},
language = {eng},
number = {1},
journal = {Scientific Reports},
author = {Tewhaiti-Smith, Jordan and Semprini, Alex and Bush, Deborah and Anderson, Augustus and Eathorne, Allie and Johnson, Neil and Girling, Jane and East, Michael and Marriott, Joy and Armour, Mike},
month = mar,
year = {2022},
pmid = {35292715},
pmcid = {PMC8924267},
keywords = {Adult, Aged, Chronic Pain, Delayed Diagnosis, Endometriosis, Female, Humans, New Zealand, Pelvic Pain, Quality of Life, Surveys and Questionnaires, Young Adult},
pages = {4425},
}
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Additionally, for those with an endometriosis diagnosis, diagnostic delay and factors affecting this over time were explored. There were 800 respondent (620 with self-reported endometriosis). CPP symptoms, irrespective of final diagnosis, started prior to age 20 and negatively impacted multiple life domains including employment, education, and relationships. Mean diagnostic delay for those with endometriosis was 8.7 years, including 2.9 years between symptom onset and first presentation and 5.8 years between first presentation and diagnosis. Five doctors on average were seen prior to diagnosis. However, there was a reduction in the interval between first presentation and diagnosis over time, from 8.4 years for those presenting before 2005, to two years for those presenting after 2012. 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