An International Collaborative Initiative to Establish a Quality-of-Life Questionnaire for Children and Adolescents with Repair of Esophageal Atresia in 14 Countries. The International Ea-Qol Group, n. Children (Basel, Switzerland), 11(3):286, February, 2024. ![An International Collaborative Initiative to Establish a Quality-of-Life Questionnaire for Children and Adolescents with Repair of Esophageal Atresia in 14 Countries [link]](https://bibbase.org/img/filetypes/link.svg "link")
Paper doi abstract bibtex 1 download The EA-QOL questionnaire measures quality-of-life specifically for children born with esophageal atresia (EA) aged 8-18 and was completed in Sweden and Germany. This study aimed to describe an international collaborative initiative to establish a semantically equivalent linguistic version of the EA-QOL questionnaires in 12 new countries. The 24-item EA-QOL questionnaire was translated into the target languages and the translated questionnaire was evaluated through cognitive debriefing interviews with children with EA aged 8-18 and their parents in each new country. Participants rated an item as to whether an item was easy to understand and sensitive/uncomfortable to answer. They could choose not to reply to a non-applicable/problematic item and provide open comments. Data were analyzed using predefined psychometric criteria; item clarity ≥80%, item sensitive/uncomfortable to answer ≤20%, item feasibility(missing item responses ≤5%). Decision to improve any translation was made by native experts-patient stakeholders and the instrument developer. Like in Sweden and Germany, all items in the cross-cultural analysis of child self-report (ntot = 82, 4-10 children/country) met the criteria for item clarity in all 12 new countries, and in parent-report (ntot = 86, 5-10 parents/country) in 8/12 countries. All items fulfilled the criteria for sensitive/uncomfortable to answer (child-report 1.2-9.9%; parent-report 0-11.6%) and item feasibility. Poor translations were resolved. Hence, this study has established semantically equivalent linguistic versions of the EA-QOL questionnaire for use in children aged 8-18 with repair of EA in and across 14 countries.
@article{the_international_ea-qol_group_international_2024,
title = {An {International} {Collaborative} {Initiative} to {Establish} a {Quality}-of-{Life} {Questionnaire} for {Children} and {Adolescents} with {Repair} of {Esophageal} {Atresia} in 14 {Countries}},
volume = {11},
issn = {2227-9067},
url = {http://hdl.handle.net/20.500.12210/114129},
doi = {10.3390/children11030286},
abstract = {The EA-QOL questionnaire measures quality-of-life specifically for children born with esophageal atresia (EA) aged 8-18 and was completed in Sweden and Germany. This study aimed to describe an international collaborative initiative to establish a semantically equivalent linguistic version of the EA-QOL questionnaires in 12 new countries. The 24-item EA-QOL questionnaire was translated into the target languages and the translated questionnaire was evaluated through cognitive debriefing interviews with children with EA aged 8-18 and their parents in each new country. Participants rated an item as to whether an item was easy to understand and sensitive/uncomfortable to answer. They could choose not to reply to a non-applicable/problematic item and provide open comments. Data were analyzed using predefined psychometric criteria; item clarity ≥80\%, item sensitive/uncomfortable to answer ≤20\%, item feasibility(missing item responses ≤5\%). Decision to improve any translation was made by native experts-patient stakeholders and the instrument developer. Like in Sweden and Germany, all items in the cross-cultural analysis of child self-report (ntot = 82, 4-10 children/country) met the criteria for item clarity in all 12 new countries, and in parent-report (ntot = 86, 5-10 parents/country) in 8/12 countries. All items fulfilled the criteria for sensitive/uncomfortable to answer (child-report 1.2-9.9\%; parent-report 0-11.6\%) and item feasibility. Poor translations were resolved. Hence, this study has established semantically equivalent linguistic versions of the EA-QOL questionnaire for use in children aged 8-18 with repair of EA in and across 14 countries.},
language = {eng},
number = {3},
journal = {Children (Basel, Switzerland)},
author = {The International Ea-Qol Group, null},
month = feb,
year = {2024},
pmid = {38539321},
pmcid = {PMC10968779},
keywords = {children, cognitive debriefing interview, cultural adaptation, esophageal atresia, quality of life, rare disease},
pages = {286},
}
Downloads: 1
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The 24-item EA-QOL questionnaire was translated into the target languages and the translated questionnaire was evaluated through cognitive debriefing interviews with children with EA aged 8-18 and their parents in each new country. Participants rated an item as to whether an item was easy to understand and sensitive/uncomfortable to answer. They could choose not to reply to a non-applicable/problematic item and provide open comments. Data were analyzed using predefined psychometric criteria; item clarity ≥80%, item sensitive/uncomfortable to answer ≤20%, item feasibility(missing item responses ≤5%). Decision to improve any translation was made by native experts-patient stakeholders and the instrument developer. Like in Sweden and Germany, all items in the cross-cultural analysis of child self-report (ntot = 82, 4-10 children/country) met the criteria for item clarity in all 12 new countries, and in parent-report (ntot = 86, 5-10 parents/country) in 8/12 countries. 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