Proceedings of an expert workshop on community agreement for gene drive research in Africa - Co-organised by KEMRI, PAMCA and Target Malaria [version 2; peer review: 2 approved]

Proceedings of an expert workshop on community agreement for gene drive research in Africa - Co-organised by KEMRI, PAMCA and Target Malaria [version 2; peer review: 2 approved]. Thizy, D., Pare Toe, L., Mbogo, C., Matoke-Muhia, D., Alibu, V. P., Barnhill-Dilling, S. K., Chantler, T., Chongwe, G., Delborne, J., Kapiriri, L., Nassonko Kavuma, E., Koloi-Keaikitse, S., Kormos, A., Littler, K., Lwetoijera, D., Vargas de Moraes, R., Mumba, N., Mutengu, L., Mwichuli, S., Nabukenya, S. E., Nakigudde, J., Ndebele, P., Ngara, C., Ochomo, E., Odiwuor Ondiek, S., Rivera, S., Roberts, A. J, Robinson, B., Sambakunsi, R., Saxena, A., Sykes, N., Tarimo, B. B, Tiffin, N., & Tountas, K. H Gates Open Research, 5:19, F1000 Research Ltd, mar, 2021.

Paper doi abstract bibtex

Gene drive research is progressing towards future field evaluation of modified mosquitoes for malaria control in sub-Saharan Africa. While many literature sources and guidance point to the inadequacy of individual informed consent for any genetically modified mosquito release, including gene drive ones, (outside of epidemiological studies that might require blood samples) and at the need for a community-level decision, researchers often find themselves with no specific guidance on how that decision should be made, expressed and by whom. Target Malaria, the Kenya Medical Research Institute and the Pan African Mosquito Control Association co-organised a workshop with researchers and practitioners on this topic to question the model proposed by Target Malaria in its research so far that involved the release of genetically modified sterile male mosquitoes and how this could be adapted to future studies involving gene drive mosquito releases for them to offer reflections about potential best practices. This paper shares the outcomes of that workshop and highlights the remaining topics for discussion before a comprehensive model can be designed.

@article{Thizy2021,
abstract = {Gene drive research is progressing towards future field evaluation of modified mosquitoes for malaria control in sub-Saharan Africa. While many literature sources and guidance point to the inadequacy of individual informed consent for any genetically modified mosquito release, including gene drive ones, (outside of epidemiological studies that might require blood samples) and at the need for a community-level decision, researchers often find themselves with no specific guidance on how that decision should be made, expressed and by whom. Target Malaria, the Kenya Medical Research Institute and the Pan African Mosquito Control Association co-organised a workshop with researchers and practitioners on this topic to question the model proposed by Target Malaria in its research so far that involved the release of genetically modified sterile male mosquitoes and how this could be adapted to future studies involving gene drive mosquito releases for them to offer reflections about potential best practices. This paper shares the outcomes of that workshop and highlights the remaining topics for discussion before a comprehensive model can be designed.},
author = {Thizy, Delphine and {Pare Toe}, Lea and Mbogo, Charles and Matoke-Muhia, Damaris and Alibu, Vincent Pius and Barnhill-Dilling, S. Kathleen and Chantler, Tracey and Chongwe, Gershom and Delborne, Jason and Kapiriri, Lydia and {Nassonko Kavuma}, Esther and Koloi-Keaikitse, Sethlomo and Kormos, Ana and Littler, Katherine and Lwetoijera, Dickson and {Vargas de Moraes}, Roberta and Mumba, Noni and Mutengu, Lilian and Mwichuli, Sylvia and Nabukenya, Silvia Elizabeth and Nakigudde, Janet and Ndebele, Paul and Ngara, Carolyne and Ochomo, Eric and {Odiwuor Ondiek}, Simon and Rivera, Stephany and Roberts, Aaron J and Robinson, Benjamin and Sambakunsi, Rodrick and Saxena, Abha and Sykes, Naima and Tarimo, Brian B and Tiffin, Nicki and Tountas, Karen H},
doi = {10.12688/gatesopenres.13221.2},
file = {:C$\backslash$:/Users/01462563/AppData/Local/Mendeley Ltd./Mendeley Desktop/Downloaded/Thizy et al. - 2021 - Proceedings of an expert workshop on community agreement for gene drive research in Africa - Co-organised by KEMRI.pdf:pdf},
issn = {25724754},
journal = {Gates Open Research},
keywords = {Consent,OA,agreement,community acceptance,fund{\_}not{\_}ack,gene drive,genetically modified mosquitoes,original,stakeholder engagement},
mendeley-tags = {OA,fund{\_}not{\_}ack,original},
month = {mar},
pages = {19},
pmid = {33884362},
publisher = {F1000 Research Ltd},
title = {{Proceedings of an expert workshop on community agreement for gene drive research in Africa - Co-organised by KEMRI, PAMCA and Target Malaria [version 2; peer review: 2 approved]}},
url = {https://doi.org/10.12688/gatesopenres.13221.1},
volume = {5},
year = {2021}
}

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