Potential risks and solutions for sharing genome summary data from African populations. Tiffin, N. BMC Medical Genomics, 12(1):152, 2019.
Potential risks and solutions for sharing genome summary data from African populations [link]Paper  doi  abstract   bibtex   
Genome data from African population can substantially assist the global effort to identify aetiological genetic variants, but open access to aggregated genomic data from these populations poses some significant risks of community- and population- level harms. A recent amendment to National Institutes of Health policy, following various engagements with predominantly North American scientists, requires that genomic summary results must be made available openly on the internet without access oversight or controls.
@article{Tiffin2019,
abstract = {Genome data from African population can substantially assist the global effort to identify aetiological genetic variants, but open access to aggregated genomic data from these populations poses some significant risks of community- and population- level harms. A recent amendment to National Institutes of Health policy, following various engagements with predominantly North American scientists, requires that genomic summary results must be made available openly on the internet without access oversight or controls.},
author = {Tiffin, Nicki},
doi = {10.1186/s12920-019-0604-6},
issn = {1755-8794},
journal = {BMC Medical Genomics},
keywords = {OA,fund{\_}not{\_}ack,perspective},
mendeley-tags = {OA,fund{\_}not{\_}ack,perspective},
number = {1},
pages = {152},
pmid = {31684976},
title = {{Potential risks and solutions for sharing genome summary data from African populations}},
url = {https://doi.org/10.1186/s12920-019-0604-6},
volume = {12},
year = {2019}
}

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